National Association for Down Syndrome
Donations deductibleNational Association for Down Syndrome's network
14 people4 organisationsi14 people and 4 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (14). Violet dotted lines (4) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
14 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 12 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Adrian Drower | Director | 2020 | 6 yrs |
| Brendan Foster | Director | 2021 | 5 yrs |
| Bridget Brown | Vice President | 2019 | 7 yrs |
| Dan Rich | Director | 2025 | 1 yr |
| Emily Judisch | Director | 2025 | 1 yr |
| Gary Johnson | Director | 2025 | 1 yr |
| Heather Bernal | Director | 2025 | 1 yr |
| Linda Smarto | Excecutive Director | 2023 | 3 yrs |
| Martha Padilla | Director | 2021 | 5 yrs |
| Matt Manzella | Director | 2021 | 5 yrs |
| Matthew Fox | Director | 2025 | 1 yr |
| Michael Carbonara | Treasurer | 2023 | 3 yrs |
| Tiana Williams | Company secretary | 2021 | 5 yrs |
| Zach Carusona | Director | 2025 | 1 yr |
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Anne Reinertson | Program and Outreach Coordinator | 2025 |
| Blair Covino | Devlopmwnt and Communication Coordi | 2025 |
| DEB Kracik | Office and Bookkeeping Coordinator | 2025 |
| Jessica Mark | Family Resource and Outreach Coordi | 2025 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Linda Smarto | Excecutive Director | 40 | $80k | ||
| Michael Carbonara | Treasurer | 1 | $0 | ||
| Adrian Drower | Director | 1 | $0 | ||
| Brendan Foster | Director | 1 | $0 | ||
| Matt Manzella | Director | 1 | $0 | ||
| Martha Padilla | Director | 1 | $0 | ||
| Bridget Brown | Vice President | 1 | $0 | ||
| Tiana Williams | Secretary | 1 | $0 | ||
| Heather Bernal | Director | 1 | $0 | ||
| Dan Rich | Director | 1 | $0 | ||
| Zach Carusona | Director | 1 | $0 | ||
| Gary Johnson | Director | 1 | $0 | ||
| Matthew Fox | Director | 1 | $0 | ||
| Emily Judisch | Director | 1 | $0 | ||
| Blair Covino | Devlopmwnt and Communication Coordi | 1 | $0 | ||
| Deb Kracik | Office and Bookkeeping Coordinator | 1 | $0 | ||
| Anne Reinertson | Program and Outreach Coordinator | 1 | $0 | ||
| Jessica Mark | Family Resource and Outreach Coordi | 1 | $0 |
About
- Legal name
- National Association for Down Syndrome
- EIN
- 362592338
- Address
- 1460 Renaissance Dr Ste 102, Park Ridge, IL, 60068-1346
- State
- Illinois
- Mission
- National association for down syndromes mission is to ensure that all persons with down syndrome have the opportunity to achieve their potential in all aspects of community life. The organization offers information, support, and advocacy. (as filed on the Form 990)
- Activity (NTEE)
- G25Z Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 4 (IRS master file code)
- Formed
- 1963
- Principal officer
- Michael Carbonara (as named on the Form 990)
- IRS ruling date
- 1 November 1972
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsBridget Brown
≥6years on the filingsAdrian Drower
≥5years on the filingsBrendan Foster
≥5years on the filingsMartha Padilla
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $485k
- Total liabilities
- $8k
- Net assets or fund balances
- $477k
- Contributions and grants received
- $306k
- Program service revenue
- $0
- Employees
- 7