International 22Q11 2 Deletion Syndrome Foundation Inc
Donations deductibleRevenue
$83k
year to 31 December 2024
Expenses
$120k
year to 31 December 2024
Total assets
$190k
year to 31 December 2024
Net assets
$190k
assets less liabilities
Directors and trustees
4
4.7 years on average
Chair observed
≥6 yrs
Marc Weinberg Esq
Left since last filing
0
no seats appear to have opened
Officers and senior staff
5
named in Part VII
International 22Q11 2 Deletion Syndrome Foundation Inc's network
4 peoplei4 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (4). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
4 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Marc Weinberg ESQ Chair (also filed as Marc Weinberg) | Chairman | 2023 | 3 yrs |
| Missy Disibio Chair | Chairman | 2018 | 8 yrs |
| Melissa Maisenbacher | Company secretary | 2023 | 3 yrs |
| Suzanne Dicamillo | Treasurer | 2023 | 3 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Marc Weinberg ESQ | Vice-Chairperson | since 2018 |
| Melissa Maisenbacher Ms CGC | Company secretary | 2019 |
| Missy Disibio | Vice-Chairperson | 2019 |
| Sheila Kambin MD | Chairperson | 2018 |
| Suzanne Dicamillo | Treasurer | since 2018 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Marc Weinberg | Chairman | 5 | $0 | ||
| Missy Disibio | Chairman | 5 | $0 | ||
| Melissa Maisenbacher | Secretary | 5 | $0 | ||
| Suzanne Dicamillo | Treasurer | 5 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- International 22q11 2 Deletion Syndrome Foundation Inc
- EIN
- 364540878
- Address
- 22 Tanforan Ct, Matawan, NJ, 07747-3521
- State
- New Jersey
- Activity (NTEE)
- P20 Human services
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Human Services
- Size band
- 4 (IRS master file code)
- IRS ruling date
- 1 April 2024
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 4, latest 2024
- IRS Publication 78
- PC (contributions deductible)
- Principal officer
- Wendy J Rose (Form 990-N, tax year 2008)
Most connected
Longest observed on the filings
≥8years on the filingsMissy Disibio
≥3years on the filingsMarc Weinberg ESQ
≥3years on the filingsMelissa Maisenbacher
≥3years on the filingsSuzanne Dicamillo
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $190k
- Net assets or fund balances
- $190k
Filed finances
2 yearsiTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $83k | $120k | Deficit $37k |
| 2023 | $366k | $315k | $52k |
As filed on the IRS Form 990. US dollars.