Alternating Hemiplegia of Childhood Foundation Inc
Donations deductibleAlternating Hemiplegia of Childhood Foundation Inc's network
6 peoplei6 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (6). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
6 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 10 voting members of its governing body on its latest Form 990 Part VI; we list 6 in Part VII (Part VII does not always name every voting member).| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Adalberto Duarte | Director | 2025 | 1 yr |
| Bill Gerber | Director | 2021 | 5 yrs |
| Kathy Sharo | Director | 2024 | 2 yrs |
| Lynn Egan | Director | 2021 | 5 yrs |
| Mollie Erpenbeck | Director | 2024 | 2 yrs |
| Sharon Ciccodicola | Director | 2021 | 5 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
6 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Cate Cohen | Company secretary | since 2024 |
| Gene Andrasco | Treasurer | since 2021 |
| Heather Gates | Vice-President of Education & Family Support | since 2024 |
| Joshua Marszalek | President | 2021 |
| Meredith Schalick | Vice-President | 2021 |
| Vicky Platt | Company secretary | since 2021 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Lynn Egan | Director | 1 | $0 | ||
| Kathy Sharo | Director | 1 | $0 | ||
| Mollie Erpenbeck | Director | 1 | $0 | ||
| Sharon Ciccodicola | Director | 1 | $0 | ||
| Bill Gerber | Director | 1 | $0 | ||
| Adalberto Duarte | Director | 1 | $0 | ||
| Vicky Platt | President | 4 | $0 | ||
| Gene Andrasco | Treasurer | 4 | $0 | ||
| Heather Gates | Vice-President of Education & Family Support | 4 | $0 | ||
| Cate Cohen | Secretary | 4 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Alternating Hemiplegia of Childhood Foundation Inc
- EIN
- 383225425
- Address
- 2000 Town Ctr Ste 1900, Southfield, MI, 48075-1152
- State
- Michigan
- Mission
- Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC. (as filed on the Form 990)
- Activity (NTEE)
- H80 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 6 (IRS master file code)
- Formed
- 1995
- Principal officer
- Vicky Platt (as named on the Form 990)
- IRS ruling date
- 1 December 1997
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 4, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥5years on the filingsBill Gerber
≥5years on the filingsLynn Egan
≥5years on the filingsSharon Ciccodicola
≥2years on the filingsKathy Sharo
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $1.7m
- Total liabilities
- $0
- Net assets or fund balances
- $1.7m
- Contributions and grants received
- $196k
- Program service revenue
- $0
- Grants and similar paid out
- $97k
- Employees
- 0
- Volunteers
- 100
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $283k | $201k | $82k |
As filed on the IRS Form 990. US dollars.
Grants paid
5 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Northwestern University | $35k | |
| Brown University | Medical Research | $22k |
| iXCells Biotechnologies | Medical Research | $17k |
| Jackson Laboratories | Medical Research | $12k |
| Somalogic Operating Company | Medical Research | $11k |