Prader-Willi Syndrome Association
EIN 411306908 · FL · 501(c)03
The organisation
- 1032 E BRANDON BLVD 4744 4744, BRANDON, FL, 33511-5509, FL 33511-5509
- Size band: 6
Source: IRS Tax-Exempt Organization filings and the Exempt Organization Business Master File. US Federal Government public domain. Board history observed across annual filings.
Board at a glance
Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 15 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
Renewal outlook
Medium-priority approach observed from annual filings
- 2 board member(s) left between the last two filings - a seat may be open.
- Revenue about $1.6m.
- The board chair has served at least 8 years (observed across filings) - a chair transition may be approaching.
A computed likelihood from the observed filing history and filed revenue. It is not a confirmed vacancy, and this edition never states that a nonprofit is recruiting. "Departures" mean a board member was on the previous filing but not the latest one, which usually means a seat opened but can also mean they were simply not listed that year.
Filed finances
| Tax year | Total revenue | Total expenses |
|---|---|---|
| 2024 | $1.6m | $1.6m |
As filed on the IRS Form 990.
The board (directors and trustees)
| Name | Title as filed | On the filings |
|---|---|---|
| Marguerite Rupnow Chair | CHAIRMAN OF THE BOARD | on filings since 2017 (at least 8y) |
| ANN Scheimann | DIRECTOR | on filings since 2021 (at least 4y) |
| Clint Hurdle | DIRECTOR | on filings since 2021 (at least 4y) |
| Denise Servais | SECRETARY | on filings since 2019 (at least 6y) |
| Jeffrey Covington (also filed as Jeff Covington) | DIRECTOR | on filings since 2021 (at least 4y) |
| John Lens | DIRECTOR | on filings since 2021 (at least 4y) |
| Kathryn Lucero | DIRECTOR | on filings since 2022 (at least 3y) |
| Lisa Lamb | DIRECTOR | on filings since 2022 (at least 3y) |
| Matt Mccleery | DIRECTOR | on filings since 2019 (at least 6y) |
| Michelle Torbert | DIRECTOR | on filings since 2021 (at least 4y) |
| Mitch Cohen | DIRECTOR | on filings since 2024 (at least 1y) |
| TIM Hearn | DIRECTOR | on filings since 2019 (at least 6y) |
| Tina Ihenfeld | TREASURER | first appears 2025 |
The board is the directors and trustees named in Part VII of the organisation's annual IRS Form 990; officers and senior staff are listed separately below, not counted as board. The IRS files no appointment date, so tenure here is observed from how many years a person appears on the filings - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.
Source: IRS Tax-Exempt Organization filings and the Exempt Organization Business Master File. US Federal Government public domain. Board history observed across annual filings.
Officers and senior leadership
Named in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
| Name | Title as filed | On the filings |
|---|---|---|
| Kenneth R Smith | EXECUTIVE DIRECTOR | 2017 |
| Paige Rivard | EXECUTIVE DIRECTOR | since 2020 |
| Paige Rivardresigned 7-28-23 | EXECUTIVE DIRECTOR | 2023 |
| Stacy Ward | CHIEF EXECUTIVE OFFICER | since 2024 |
| Stephen Queior | EXECUTIVE DIRECTOR | since 2018 |