Shwachman Diamond Syndrome Foundation Inc
Donations deductibleShwachman Diamond Syndrome Foundation Inc's network
9 people1 organisationi9 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (9). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
9 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 9 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Bryan Sample | Advisor | 2018 | 8 yrs |
| Christian DEL RE | Vice President | 2018 | 8 yrs |
| Deana Valiante | Outside Dir | 2024 | 2 yrs |
| Joan Mowery | President | 2018 | 8 yrs |
| John Wall | Treasurer | 2024 | 2 yrs |
| Mary Balint | Company secretary | 2019 | 7 yrs |
| Pamela Miller | Executive Dir. | 2018 | 8 yrs |
| Shari St Hilaire | Outside Dir | 2024 | 2 yrs |
| Tom Dahlman | Outside Dir | 2024 | 2 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Joan Mowery | Founder | 5 | $0 | ||
| Christian del Re | Vice President | 5 | $0 | ||
| Mary Balint | President | 5 | $0 | ||
| John Wall | Treasurer | 5 | $0 | ||
| Deana Valiante | Secretary | 5 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Shwachman Diamond Syndrome Foundation Inc
- EIN
- 431709945
- Address
- Po Box 124, Van Wyck, SC, 29744-0124
- State
- South Carolina
- Mission
- Raising awareness of and support for the shwachman-daimond syndrome disease. This is done through educational conferences and the publicaiton of periodalcs such as newsletters and brouchures. Research grants are also awarded for the study of the syndrome. (as filed on the Form 990)
- Activity (NTEE)
- P80 Human services
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Human Services
- Size band
- 4 (IRS master file code)
- IRS ruling date
- 1 October 1995
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsBryan Sample
≥8years on the filingsChristian DEL RE
≥8years on the filingsJoan Mowery
≥8years on the filingsPamela Miller
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $194k
- Total liabilities
- $1k
- Net assets or fund balances
- $192k
- Contributions and grants received
- $88k
- Program service revenue
- $0
- Employees
- 0
- Volunteers
- 25
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $84k | $139k | Deficit $55k |
As filed on the IRS Form 990. US dollars.