Pcdh19 Alliance
Donations deductibleRevenue
$285k
year to 31 December 2024
Expenses
$48k
year to 31 December 2024
Total assets
$279k
$0 liabilities
Net assets
$279k
assets less liabilities
Directors and trustees
5
6.6 years on average
Staff
1
employees, year to 31 December 2024
Left since last filing
0
no seats appear to have opened
Officers and senior staff
2
named in Part VII
Pcdh19 Alliance's network
5 peoplei5 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (5). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
5 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Christine Rollins | Treasurer | 2023 | 3 yrs |
| Heather Fryman | Board Member | 2022 | 4 yrs |
| Jennifer Hendrix Holland | Board Secretary | 2018 | 8 yrs |
| Julie Walters | Board President | 2018 | 8 yrs |
| Karin Wells-Kilpatrick | Board Vice President | 2018 | 8 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Christine Rollins | Board CFO/Treasurer | 2022 |
| Heather Fryman | Board CFO/Treasurer | since 2018 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Julie Walters | Board President | 3 | $3k | ||
| Karin Wells-Kilpatrick | Board Vice President | 2 | $0 | ||
| Jennifer Hendrix Holland | Board Secretary | 1 | $0 | ||
| Heather Fryman | Board Member | 1 | $0 | ||
| Christine Rollins | Treasurer | 1 | $0 |
Colorado roster
7 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253037435). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Julie Walters | President |
| Jennifer Holland | Board Member/Secretary |
| Christy Rollins | |
| Christy Rollins | Treasurer |
| Karin Wells-Kilpatrick | Vice President |
| Jane McGill | Board Member |
| Heather Fryman | Board Member |
About
- Legal name
- Pcdh19 Alliance
- EIN
- 454020102
- Address
- 51 San Miguel Way, Novato, CA, 94945-1718
- State
- California
- Mission
- Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without... (as filed on the Form 990)
- Activity (NTEE)
- T30 Philanthropy, voluntary services and grantmaking
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Philanthropy, Voluntarism & Grantmaking Foundations
- Size band
- 4 (IRS master file code)
- Formed
- 2014
- Principal officer
- Julie Walters (as named on the Form 990)
- IRS ruling date
- 1 March 2012
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsJennifer Hendrix Holland
≥8years on the filingsJulie Walters
≥8years on the filingsKarin Wells-Kilpatrick
≥4years on the filingsHeather Fryman
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $279k
- Total liabilities
- $0
- Net assets or fund balances
- $279k
- Contributions and grants received
- $250k
- Program service revenue
- $0
- Employees
- 1
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.PCDH19 Alliance likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
- State
- Colorado
- Entity type
- nonprofit corporation
- Status
- Good Standing
- Formed
- 11 December 2018
- Registered agent
- Incorp Services, Inc. (city and state not held)
This register does not publish officers or directors.