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US nonprofit · EIN 454805875 · Manlius, NYiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 454805875) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2012.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Virtual Center for Velo-Cardio-Facial Syndrome Inc

Donations deductible
Revenue
$275k
year to 31 December 2025
Expenses
$370k
year to 31 December 2025
Total assets
$151k
$1k liabilities
Net assets
$150k
assets less liabilities
Directors and trustees
4
5.4 years on average
Staff
2
employees, year to 31 December 2025
Left since last filing
0
no seats appear to have opened
Officers and senior staff
3
named in Part VII
How am I connected?

Virtual Center for Velo-Cardio-Facial Syndrome Inc's network

4 peoplei4 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (4). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

4 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 4 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Adam ShprintzenBoard Member2024
2 yrs
Deborah MenterBoard Member2018
8 yrs
Karen J Golding-KushnerBoard Member2024
2 yrs
William D Graf MDBoard Member2018
8 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Deborah ShprintzenCompany secretary2024
Jodi BloomTreasurer2024
Robert ShprintzenPresidentsince 2020

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Jodi BloomTreasurer40$81k
Robert ShprintzenChariman-Pre40$65k
Karen J Golding-KushnerBoard Member$6k
Adam ShprintzenBoard Member$660
William D Graf MDBoard Member$0
Deborah MenterBoard Member$0
Deborah ShprintzenSecretary$0

About

Legal name
Virtual Center for Velo-Cardio-Facial Syndrome Inc
EIN
454805875
Address
8138 Solomon Seal Ln, Manlius, NY, 13104-9364
State
New York
Mission
The corporation will provide free consult & information services to families of individuals or individuals with velo-cardio-facial syndrome (vcfs), craniofacial disorders and genetic syndromes and the clinicians who are treating people with these disorders in order to provide them with the latest information about their disorders, relevant research and treatment outcomes. The organization... (as filed on the Form 990)
Activity (NTEE)
E70 Health care
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Health Care
Size band
4 (IRS master file code)
Formed
2012
Principal officer
Robert Shprintzen (as named on the Form 990)
IRS ruling date
1 August 2012
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsDeborah Menter
≥8years on the filingsWilliam D Graf MD
≥2years on the filingsAdam Shprintzen
≥2years on the filingsKaren J Golding-Kushner

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$151k
Total liabilities
$1k
Net assets or fund balances
$150k
Contributions and grants received
$275k
Program service revenue
$0
Employees
2

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$291k$284k$7k

As filed on the IRS Form 990. US dollars.