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US nonprofit · EIN 455308117 · Clayton, MOiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 455308117) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2012.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

The Snow Foundation

Donations deductible
Revenue
$608k
year to 31 December 2024
Expenses
$238k
year to 31 December 2024
Total assets
$973k
Minus $54 liabilities
Net assets
$973k
assets less liabilities
Directors and trustees
6
4.9y av
Staff
0
8 volunteers
Left since last filing
2
33% of the board
Voting members
6
reported in Part VI
How am I connected?

The Snow Foundation's network

6 people1 organisationi6 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (6). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

6 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 6 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Jack Thomas SnowDirector Communications2023
3 yrs
Patricia M Gibilisco (also filed as Pat Gibilisco)Patient Advocacy Liaison2020
6 yrs
Robert W Haggerty (also filed as Robert Haggerty)Treasurer2020
6 yrs
Sarah J Gladstone MDChief Scientific Officer2024
2 yrs
Spencer W Owens ESQCompany secretary2024
2 yrs
Stephanie Snow Gebel (also filed as Stephanie Gebel, Stephanie S Gebel)President2018
8 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Stephanie S GebelPresident40$60k
Patricia M GibiliscoPatient Advocacy Liaison18$24k
Spencer W Owens EsqSecretary1$0
Robert W HaggertyTreasurer2$0
Sarah J Gladstone MDChief Scientific Officer8$0
Jack Thomas SnowDirector Communications2$0

About

Legal name
The Snow Foundation
EIN
455308117
Address
Po Box 50224, Clayton, MO, 63105-5224
State
Missouri
Mission
The snow foundation is a collective voice for wolfram syndrome patients, working towards a cure for wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss and neurodegeneration.wolfram syndrome supports and coordinates international collaborative research efforts. The foundation also provides valuable insight, resources, and support to the patients and... (as filed on the Form 990)
Activity (NTEE)
T30 Philanthropy, voluntary services and grantmaking
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Philanthropy, Voluntarism & Grantmaking Foundations
Size band
5 (IRS master file code)
Formed
2012
Principal officer
Stephanie Gebel (as named on the Form 990)
IRS ruling date
1 November 2013
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsStephanie Snow Gebel
≥6years on the filingsPatricia M Gibilisco
≥6years on the filingsRobert W Haggerty
≥3years on the filingsJack Thomas Snow

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$973k
Total liabilities
Minus $54
Net assets or fund balances
$973k
Contributions and grants received
$630k
Program service revenue
$0
Grants and similar paid out
$57k
Employees
0
Volunteers
8

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$608k$238k$370k

As filed on the IRS Form 990. US dollars.

Grants paid

1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Washington University School of MedicineGlp1 research$0