BEV Hartig Huntington Disease Foundation Inc
Donations deductibleBEV Hartig Huntington Disease Foundation Inc's network
8 people2 organisationsi8 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Becky Gerig | Director | 2023 | 3 yrs |
| Bob Hartig | Director | 2023 | 3 yrs |
| Cindi Berry | President | 2023 | 3 yrs |
| Kathy Murphy | Director | 2019 | 7 yrs |
| Lisa Rump | Company secretary | 2019 | 7 yrs |
| Natalie Zuan | Director | 2023 | 3 yrs |
| Shelley Boles Lewis (also filed as Shelley Lewis) | Director | 2019 | 7 yrs |
| Wava Raymond | Treasurer | 2019 | 7 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Cecelia Coble | Company secretary | 2019 |
| Cindi Berry | President | since 2019 |
| Lisa Rump | Company secretary | since 2020 |
| Nanette Johnson | Treasurer | since 2019 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Lisa Rump | Secretary | 1 | $0 | ||
| Becky Gerig | Director | 1 | $0 | ||
| Shelley Lewis | Director | 1 | $0 | ||
| Kathy Murphy | Director | 1 | $0 | ||
| Wava Raymond | Treasurer | 1 | $0 | ||
| Bob Hartig | Director | 1 | $0 | ||
| Cindi Berry | President | 3 | $0 | ||
| Natalie Zuan | Director | 1 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Bev Hartig Huntington Disease Foundation Inc
- EIN
- 460990518
- Address
- Po Box 7228, Fishers, IN, 46038-7228
- State
- Indiana
- Mission
- To find a cure for Huntington's Disease (as filed on the Form 990)
- Activity (NTEE)
- H12 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 4 (IRS master file code)
- Formed
- 2012
- Principal officer
- Cindi Berry (as named on the Form 990)
- IRS ruling date
- 1 April 2014
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsKathy Murphy
≥7years on the filingsLisa Rump
≥7years on the filingsShelley Boles Lewis
≥7years on the filingsWava Raymond
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $397k
- Total liabilities
- $0
- Net assets or fund balances
- $397k
- Contributions and grants received
- $305k
- Program service revenue
- $0
- Grants and similar paid out
- $363k
- Employees
- 0
- Volunteers
- 15
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $391k | $373k | $19k |
As filed on the IRS Form 990. US dollars.
Grants paid
4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| John Hopkins UniversityDuan | $163k | |
| Mass Institute of Technology | $100k | |
| Huntington Disease Society | $75k | |
| IU Foundation | $20k |