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Governance Register
US nonprofit · EIN 461996362 · Reston, VAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 461996362) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2021.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Prevent Childhood Cancer Foundation's network

17 people2 organisationsi17 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (17). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

17 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 16 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Henry White ChairCo-Founder Chairman2022
4 yrs
John Sadlik ChairGala Chairman2018
8 yrs
Adam HammerEvents Coordinator2022
4 yrs
Amy Kathleen Lcsw (also filed as Amy Kathleen)Director2023
3 yrs
Anne RobertsonCo-Founder Vice-Chair2022
4 yrs
Brady Lucas MED ChesDirector2024
2 yrs
Charles Burlew IIIDirector2024
2 yrs
Edward Seibolt (also filed as ED Seibolt)Director2023
3 yrs
Elise Willis ESQDirector2024
2 yrs
Jenifer TaylorDirector2024
2 yrs
Jennifer Cullen PHD (also filed as Jennifer Cullen)Director2023
3 yrs
Jonathan Eric Agin JDExecutive Director2023
3 yrs
Matthew Kessler (also filed as Matt Kessler)Director2023
3 yrs
Paul KissinDirector2024
2 yrs
Randee WittkopfDirector2022
4 yrs
Riley WagnerDirector2022
4 yrs
Sarah HohmanDirector2023
3 yrs
Under 5 years5 to 6 years6 years or moreShow all 17 →

Officers and senior leadership

3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Beth WhiteExecutive Director & Co-Fo2018
Henry WhiteExecutive Director & Co-Fo2018
Jonathan Eric Agin JDExecutive Director2022

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Jonathan Eric Agin JDExecutive Director25$63k
Henry WhiteCo-Founder Chairman5$0
Adam HammerEvents Coordinator1$0
Amy Kathleen LCSWDirector1$0
Anne RobertsonCo-Founder Vice-Chair1$0
Randee WittkopfDirector1$0
John SadlikGala Chairman1$0
Jennifer Cullen PhDDirector1$0
Sarah HohmanDirector1$0
Matthew KesslerDirector1$0
Edward SeiboltDirector1$0
Riley WagnerDirector1$0
Charles Burlew IIIDirector1$0
Brady Lucas Med ChesDirector1$0
Elise Willis EsqDirector1$0
Jenifer TaylorDirector1$0
Paul KissinDirector1$0

About

Legal name
Prevent Childhood Cancer Foundation
EIN
461996362
Address
11654 Plaza America Dr 935, Reston, VA, 20190-4700
State
Virginia
Mission
To build the next generation of prevention-sensitive care for children with cancer and their families. Through a focus on prevention, research, education, and programs (prep), prep4gold works to improve every part of the cancer ...continued on schedule ocontinued from page 2... Journey -- from reducing risk to advancing treatments, finding cures, and supporting survivors. (as filed on the Form 990)
Activity (NTEE)
G30 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
3 (IRS master file code)
Formed
2013
Principal officer
Henry White (as named on the Form 990)
IRS ruling date
1 May 2014
Status
Code 01 (unconditional exemption)
Form 990 filings on record
4, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsJohn Sadlik
≥4years on the filingsHenry White
≥4years on the filingsAdam Hammer
≥4years on the filingsAnne Robertson

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$80k
Total liabilities
$3k
Net assets or fund balances
$77k
Contributions and grants received
$120k
Program service revenue
$0
Grants and similar paid out
$50k
Employees
0
Volunteers
31

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$113k$143kDeficit $30k

As filed on the IRS Form 990. US dollars.

Grants paid

1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Samuel Krasnik FoundationSupporting samuel krasnik foundation's pediatric brain cancer research$43k