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Governance Register
US nonprofit · EIN 464309387 · Newtonville, MAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 464309387) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2013.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Usher 1F Collaborative Inc's network

12 people4 organisationsi12 people and 4 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (12). Violet dotted lines (4) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

12 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 12 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Melissa Chaikof ChairChair and Trustee2018
8 yrs
Dorie ShapiroTrustee2024
2 yrs
Elliot ChaikofVice Chair and Trustee2018
8 yrs
Eric HalperTrustee2023
3 yrs
Frank GentileTreasurer and Trustee2018
8 yrs
Heather RosensteinTrustee2022
4 yrs
Jared RootSecretary and Trustee2018
8 yrs
Julian SeewaldTrustee2018
8 yrs
Joshua CohenTrustee2022
4 yrs
Margi LevittTrustee2024
2 yrs
Rachel RootTrustee2018
8 yrs
Sari L SpringerTrustee2022
4 yrs
Under 5 years5 to 6 years6 years or moreShow all 12 →

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Melissa ChaikofChair and Trustee40$0
Elliot ChaikofVice Chair and Trustee2$0
Frank GentileTreasurer and Trustee2$0
Jared RootSecretary and Trustee4$0
Joshua CohenTrustee2$0
Rachel RootTrustee2$0
Julian SeewaldTrustee2$0
Sari L SpringerTrustee2$0
Heather RosensteinTrustee2$0
Eric HalperTrustee2$0
Margi LevittTrustee2$0
Dorie ShapiroTrustee2$0

No pay was reported for anyone in Part VII on this return.

Colorado roster

14 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263011251). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Sari SpringerTrustee
Rachel RootTrustee
Melissa ChaikofBoard Chair & Trustee
Frank GentileTreasurer and Trustee
Heather RosensteinTrustee
Jared RootSecretary and Trustee
Julian SeewaldTrustee
Melissa Chaikof
Elliot ChaikofVice Chair and Trustee
Margie LevittTrustee
Eric HalperTrustee
Dorie ShapiroTrustee
Joshua CohenTrustee
Sarah GauchDevelopment Manager

About

Legal name
Usher 1f Collaborative Inc
EIN
464309387
Address
321 Walnut St 228, Newtonville, MA, 02460-1927
State
Massachusetts
Mission
To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F. (as filed on the Form 990)
Activity (NTEE)
H40 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
5 (IRS master file code)
Formed
2013
Principal officer
Melissa Chaikof (as named on the Form 990)
IRS ruling date
1 August 2014
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsMelissa Chaikof
≥8years on the filingsElliot Chaikof
≥8years on the filingsFrank Gentile
≥8years on the filingsJared Root

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$691k
Total liabilities
$55k
Net assets or fund balances
$636k
Contributions and grants received
$463k
Program service revenue
$0
Grants and similar paid out
$697k
Employees
1
Volunteers
25

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$846k$871kDeficit $25k

As filed on the IRS Form 990. US dollars.

Grants paid

5 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Harvard University$320k
Foundation Fighting Blindness$200k
Unravel Biosciences$87k
University of Oregon Foundation$80k
LSU Foundation$5k