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Governance Register
US nonprofit · EIN 464552134 · Ledyard, CTiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 464552134) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Hope in Focus Inc's network

12 people4 organisationsi12 people and 4 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (12). Violet dotted lines (4) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

12 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Laura Manfre ChairChair2018
8 yrs
Alice SosciaDirector2019
7 yrs
Annette TontiCompany secretary2020
6 yrs
Billie JO DrakeDirector2022
4 yrs
Charles PriebeDirector2018
8 yrs
Daniel King ESQDirector2018
8 yrs
David SchulzDirector2023
3 yrs
Elizabeth BorysewiczVice Chair2018
8 yrs
George Adrian ODDirector2018
8 yrs
Jeffrey Finman PHD (also filed as Jeffrey Finman)Director2018
8 yrs
Stephanie F BrownTreasurer2018
8 yrs
Thomas RobargeDirector2019
7 yrs
Under 5 years5 to 6 years6 years or moreShow all 12 →

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Laura ManfreChair20$0
Elizabeth BorysewiczVice Chair5$0
Stephanie F BrownTreasurer2$0
Annette TontiSecretary2$0
Charles PriebeDirector2$0
David SchulzDirector2$0
Thomas RobargeDirector2$0
Alice SosciaDirector2$0
Daniel King EsqDirector2$0
Jeffrey FinmanDirector2$0
George Adrian OdDirector2$0
Billie Jo DrakeDirector2$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Hope in Focus Inc
EIN
464552134
Address
Po Box 705, Ledyard, CT, 06339-0705
State
Connecticut
Mission
Hope in focus is a 501c(3) nonprofit patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by rare inherited retinal diseases. Our mission is to generate awareness, raise funds for research, and provide outreach, support and education to those affected by lca and other rare retinal diseases. (as filed on the Form 990)
Activity (NTEE)
G41 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
4 (IRS master file code)
Formed
2014
Principal officer
Laura Manfre (as named on the Form 990)
IRS ruling date
1 September 2014
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsLaura Manfre
≥8years on the filingsCharles Priebe
≥8years on the filingsDaniel King ESQ
≥8years on the filingsElizabeth Borysewicz

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$173k
Total liabilities
$3k
Net assets or fund balances
$169k
Contributions and grants received
$217k
Program service revenue
$0
Employees
1
Volunteers
20

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$234k$219k$15k

As filed on the IRS Form 990. US dollars.

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Hope in Focus Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Connecticut Secretary of the State, business registry and officers (data.ct.gov n7gp-d28j and ka36-64k6). Licence not stated. Data last fetched 18 October 2026.
State
Connecticut
Entity type
Non-Stock
Status
Active
Formed
13 January 2014
Registered agent
United States Corporation Agents, Inc. (city and state not held)

Officers (9)

  • Adam Milne Director
  • Annette Tonti Officer, Director
  • Charles Priebe Director
  • David Schulz Director
  • Elizabeth Borysewicz Director
  • Elisse Rosen Director
  • Laura Manfre Officer
  • Stephanie Brown Officer
  • William Smith Director

City and state of officers are not held in this extract.