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Governance Register
US nonprofit · EIN 464900421 · Milwaukee, WIiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 464900421) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2017.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

International Society for the Study of Vascular Anomalies' network

12 peoplei12 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (12). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

12 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 12 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
DOV Goldenberg ChairScientific Committee Chair2020
6 yrs
Annouk BisdorffMember at Large2022
4 yrs
Denise AdamsCompany secretary2020
6 yrs
Eulalia BaselgaMember at Large2022
4 yrs
Francine BleiPresident2023
3 yrs
Gresham RichterEditor-in-Chief2018
8 yrs
Juan-Carlos Lopez-GutierrezVice President2018
8 yrs
LEO Schultze KoolPresident-Elect2020
6 yrs
Maria GarzonTreasurer2022
4 yrs
Michel WassefMember at Large2020
6 yrs
Miikka VikkulaMember at Large2020
6 yrs
Tony PeningtonPast President2018
8 yrs
Under 5 years5 to 6 years6 years or moreShow all 12 →

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Leo Schultze KoolPresident3$0
Francine BleiPast President1$0
Maria GarzonTreasurer1$0
Juan-Carlos Lopez-GutierrezPresident-Elect1$0
Denise AdamsSecretary1$0
Miikka VikkulaVice President1$0
Dov GoldenbergScientific Committee Chair1$0
Gresham RichterEditor-in-Chief1$0
Michel WassefMember at Large1$0
Annouk BisdorffMember at Large1$0
Eulalia BaselgaMember at Large1$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
International Society for the Study of Vascular Anomalies
EIN
464900421
Address
555 E Wells St Ste 1100, Milwaukee, WI, 53202-3800
State
Wisconsin
Mission
Issva is a multidisciplinary international society of physicians, scientists, and health care providers united by an interest in vascular anomalies. Issva aims to promote the highest standards of care for patients with vascular anomalies by advancing clinical and scientific knowledge concerning causes, diagnosis and treatment, and by education of physicians, health care providers, patients... (as filed on the Form 990)
Activity (NTEE)
G43 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
5 (IRS master file code)
Formed
2013
Principal officer
Leo Schultze Kool (as named on the Form 990)
IRS ruling date
1 November 2014
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsGresham Richter
≥8years on the filingsJuan-Carlos Lopez-Gutierrez
≥8years on the filingsTony Penington
≥6years on the filingsDOV Goldenberg

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$976k
Total liabilities
$168k
Net assets or fund balances
$808k
Contributions and grants received
$9k
Program service revenue
$847k
Employees
0
Volunteers
11