Curenfwithjack
Donations deductibleCurenfwithjack's network
8 people1 organisationi8 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Dan Allen | Director | 2021 | 5 yrs |
| Jonathan Marks | Director | 2023 | 3 yrs |
| Kevin Coker | Director | 2024 | 2 yrs |
| Kevin Swindon | Director | 2022 | 4 yrs |
| Marilee Hamilton | Company secretary | 2021 | 5 yrs |
| Matt Benson | Director | 2021 | 5 yrs |
| Nani Parker | Director | 2021 | 5 yrs |
| Patricia Ramstrom | Treasurer | 2022 | 4 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
7 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Dan Allen | Officer | 2020 |
| Elizabeth O'Brien | President | since 2020 |
| John Flynn | Officer | since 2018 |
| Marilee Hamilton | Officer | since 2018 |
| Matt Benson | Officer | 2020 |
| Michele Onians | Officer | 2020 |
| Nani Parker | Officer | 2020 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Elizabeth O'Brien | President | 25 | $63k | ||
| Patricia Ramstrom | Treasurer | 3 | $0 | ||
| Marilee Hamilton | Secretary | 3 | $0 | ||
| Nani Parker | Director | 3 | $0 | ||
| Dan Allen | Director | 3 | $0 | ||
| Matt Benson | Director | 3 | $0 | ||
| Kevin Swindon | Director | 3 | $0 | ||
| Jonathan Marks | Director | 3 | $0 | ||
| Kevin Coker | Director | 3 | $0 |
About
- Legal name
- Curenfwithjack
- EIN
- 465178351
- Address
- 730 Autumn Close, Alpharetta, GA, 30004-4368
- State
- Georgia
- Mission
- The mission of CureNFwithJack is to accelerate awareness and find a cure or effective treatment through the funding of research. CureNFwithJack provides seed money for innovate research in multiple areas, including but not limited to drug discovery/tumor reduction, gene therapy and quality of life issues. As neurofibromatosis (NF) is a precancer disposition syndrome, CureNFwithJack's reach... (as filed on the Form 990)
- Activity (NTEE)
- B99 Education
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Education
- Size band
- 5 (IRS master file code)
- Formed
- 2015
- Principal officer
- Elizabeth O'Brien (as named on the Form 990)
- IRS ruling date
- 1 March 2015
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥5years on the filingsDan Allen
≥5years on the filingsMarilee Hamilton
≥5years on the filingsMatt Benson
≥5years on the filingsNani Parker
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $869k
- Total liabilities
- $69k
- Net assets or fund balances
- $801k
- Contributions and grants received
- $100k
- Program service revenue
- $0
- Grants and similar paid out
- $151k
- Employees
- 1
- Volunteers
- 25
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $179k | $308k | Deficit $129k |
As filed on the IRS Form 990. US dollars.
Grants paid
2 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Childrens Tumor Foundation | Advance NF initiatives for research at Childrens Tumor Foundation. | $101k |
| Massachusetts General Hospital | Advance NF research projects at Grant Walker Lab, Massachusetts General Hospital | $50k |