Empowering Epilepsy
Donations deductibleEmpowering Epilepsy's network
22 people1 organisationi22 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (22). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
22 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 23 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Ahsan Moosa Naduvil Valappil MD | Trustee | 2019 | 7 yrs |
| ANA Arenivas PHD | Trustee | 2024 | 2 yrs |
| Andrew Latimer | Treasurer | 2023 | 3 yrs |
| Bart Benedict | Trustee | 2023 | 3 yrs |
| Danielle Becker MD | Trustee | 2024 | 2 yrs |
| Deepak Lachhwani MD | Trustee | 2022 | 4 yrs |
| Dianne Kulasa-Luke MSN Aprn-CNP | Trustee | 2024 | 2 yrs |
| Elia Pestana Knight MD | Trustee | 2019 | 7 yrs |
| Heather Lester | Vice President | 2024 | 2 yrs |
| Holly Maggiano MD | Trustee | 2018 | 8 yrs |
| Imad Najm MD | Trustee | 2023 | 3 yrs |
| Kayela Arrota PHD | Trustee | 2024 | 2 yrs |
| Lawrence Seiden MD | Trustee | 2024 | 2 yrs |
| Marvin Rossi MD | Trustee | 2023 | 3 yrs |
| Michael Kohrman MD | Trustee | 2018 | 8 yrs |
| Michael Stergiou | Trustee | 2023 | 3 yrs |
| Michelle Altshuler | Trustee | 2023 | 3 yrs |
| Patrick Brown MD | Trustee | 2023 | 3 yrs |
| Prakash Kotagal MD | Trustee | 2022 | 4 yrs |
| Stephen Hantus MD | Trustee | 2022 | 4 yrs |
| Tyler Amick | President | 2024 | 2 yrs |
| Vineet Punia MD | Trustee | 2023 | 3 yrs |
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Heather Lester | Vice President | since 2022 |
| Leigh Goldie | Executive Dir. | since 2022 |
| Tyler Amick | President | since 2022 |
| William Chapnick | VP of Marketing & Communications | since 2022 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Leigh Goldie | Executive Dir. | 50 | $73k | ||
| Michelle Altshuler | Trustee | 1 | $0 | ||
| Tyler Amick | President | 3 | $0 | ||
| Ana Arenivas PhD | Trustee | 1 | $0 | ||
| Kayela Arrota PhD | Trustee | 1 | $0 | ||
| Danielle Becker MD | Trustee | 1 | $0 | ||
| Bart Benedict | Trustee | 1 | $0 | ||
| Patrick Brown MD | Trustee | 1 | $0 | ||
| Stephen Hantus MD | Trustee | 1 | $0 | ||
| Michael Kohrman MD | Trustee | 1 | $0 | ||
| Prakash Kotagal MD | Trustee | 1 | $0 | ||
| Dianne Kulasa-Luke MSN Aprn-CNP | Trustee | 1 | $0 | ||
| Heather Lester | Vice President | 3 | $0 | ||
| Andrew Latimer | Treasurer | 3 | $0 | ||
| Deepak Lachhwani MD | Trustee | 1 | $0 | ||
| Holly Maggiano MD | Trustee | 3 | $0 | ||
| Ahsan Moosa Naduvil Valappil MD | Trustee | 1 | $0 | ||
| Imad Najm MD | Trustee | 1 | $0 | ||
| Elia Pestana Knight MD | Trustee | 1 | $0 | ||
| Vineet Punia MD | Trustee | 1 | $0 | ||
| Marvin Rossi MD | Trustee | 1 | $0 | ||
| Lawrence Seiden MD | Trustee | 1 | $0 | ||
| Michael Stergiou | Trustee | 3 | $0 |
About
- Legal name
- Empowering Epilepsy
- EIN
- 471250482
- Address
- 23500 Mercantile Rd Ste D, Beachwood, OH, 44122-5914
- State
- Ohio
- Mission
- Empowering Epilepsy connects people with epilepsy to experts and peers for education, care, and friendship. We anchor a caring community that empowers our members and their loved ones to better understand and manage their treatment plan throughout their epilepsy journey. (as filed on the Form 990)
- Activity (NTEE)
- G01 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 4 (IRS master file code)
- Formed
- 2014
- Principal officer
- Leigh Goldie (as named on the Form 990)
- IRS ruling date
- 1 April 2015
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsHolly Maggiano MD
≥8years on the filingsMichael Kohrman MD
≥7years on the filingsAhsan Moosa Naduvil Valappil MD
≥7years on the filingsElia Pestana Knight MD
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $372k
- Total liabilities
- $13k
- Net assets or fund balances
- $359k
- Contributions and grants received
- $265k
- Program service revenue
- $912
- Employees
- 4
- Volunteers
- 200
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $269k | $319k | Deficit $51k |
As filed on the IRS Form 990. US dollars.