Myalgic Encephalomyelitis Action Network Inc
Donations deductibleMyalgic Encephalomyelitis Action Network Inc's network
13 people2 organisationsi13 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (13). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
13 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI; we list 13 in Part VII (Part VII does not always name every voting member).| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Beth Mazur | Co-Chair (Thru 12/23) | 2020 | 6 yrs |
| Elizabeth Weaver | Director (As of 07/24) | 2024 | 2 yrs |
| Jennifer England | Director | 2022 | 4 yrs |
| Jill Hinson | Co-Chair (Thru 05/24) | 2020 | 6 yrs |
| Judy Gayer | Secretary (Thru 04/24) | 2020 | 6 yrs |
| Kehsi Iman Wilson - Director | (Thru 08/24) Co-Chair (As of 07/24) | 2024 | 2 yrs |
| Michelle Pinedo | Treasurer (Thru 04/24) | 2020 | 6 yrs |
| Niranjan Shekar | Secretary (As of 04/24) | 2023 | 3 yrs |
| Omar Wasow | Co-Chair (As of 05/24) | 2024 | 2 yrs |
| Robert Sklans (also filed as Rob Sklans) | Director | 2020 | 6 yrs |
| Ryan Prior | Director (Thru 05/24) | 2020 | 6 yrs |
| Shaquile Coonce | Director | 2022 | 4 yrs |
| Steve Mazur | Treasurer (As of 04/24) | 2024 | 2 yrs |
Officers and senior leadership
3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Julie Miele | Executive Director (Thru 02/22) | since 2021 |
| Laurie Jones | Executive Director | since 2023 |
| Laurie Jones - Interim | Executive Director (As of 02/22) | 2022 |
Pay and hours
year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Laurie Jones | Executive Director | 40 | $75k | ||
| Kehsi Iman Wilson | Co-Chair | 1 | $0 | ||
| Omar Wasow | Co-Chair | 2 | $0 | ||
| Steve Mazur | Treasurer | 1 | $0 | ||
| Niranjan Shekar | Secretary | 6 | $0 | ||
| Shaquile Coonce | Director | 1 | $0 | ||
| Jennifer England | Director | 1 | $0 | ||
| Robert Sklans | Director | 1 | $0 | ||
| Elizabeth Weaver | Director | 1 | $0 |
Colorado roster
10 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20213026086). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Julia Miele | |
| Jen Brea | Trustee/Executive Director |
| Michelle Pinedo | Treasurer |
| Ryan Prior | Trustee |
| Beth Mazur | Co-Chair |
| JD Davis | Trustee |
| Judy Gayer | Secretary |
| Jill Hinson | Board Chair |
| Jill Hinson | Co-Chair |
| Rob Sklans | Trustee |
About
- Legal name
- Myalgic Encephalomyelitis Action Network Inc
- EIN
- 474011296
- Address
- 1217 Wilshire Blvd Unit 3639, Santa Monica, CA, 90408-4054
- State
- California
- Mission
- To build a global movement to fight for recognition, education, and research so that one day, all people with m.e. Will have access to compassionate and effective care. (as filed on the Form 990)
- Activity (NTEE)
- G19 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 4 (IRS master file code)
- Formed
- 2014
- Principal officer
- Omar Wasow (as named on the Form 990)
- IRS ruling date
- 1 June 2017
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥6years on the filingsBeth Mazur
≥6years on the filingsJill Hinson
≥6years on the filingsJudy Gayer
≥6years on the filingsMichelle Pinedo
Latest return
year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.- Total assets
- $96k
- Total liabilities
- $5k
- Net assets or fund balances
- $91k
- Contributions and grants received
- $651k
- Program service revenue
- $2k
- Grants and similar paid out
- $500
- Employees
- 9
- Volunteers
- 100
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $694k | $690k | $3k |
As filed on the IRS Form 990. US dollars.
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.The Myalgic Encephalomyelitis Action Network likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
- State
- Colorado
- Entity type
- nonprofit corporation
- Status
- Delinquent
- Formed
- 28 January 2025
- Registered agent
- Alison Sbrana (city and state not held)
This register does not publish officers or directors.