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US nonprofit · EIN 474570748 · Lincoln, DEiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 474570748) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2017.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Myositis Support and Understanding Association

Donations deductible
Revenue
$441k
year to 31 December 2025
Expenses
$461k
year to 31 December 2025
Total assets
$217k
$35k liabilities
Net assets
$182k
assets less liabilities
Directors and trustees
5
4.4y av
Staff
0
36 volunteers
Left since last filing
0
no seats appear to have opened
Voting members
5
reported in Part VI
How am I connected?

Myositis Support and Understanding Association's network

5 people1 organisationi5 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (5). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

5 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 5 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Benita MoyersVice President and Secretary2021
5 yrs
Lauren LandmanBoard Member2023
3 yrs
Lynn WilsonPresident2020
6 yrs
Mauel LubinusChief Science Officer2023
3 yrs
Shirley SchneidersTreasurer2023
3 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Lynn WilsonPresident40$0
Shirley SchniedersTreasurer7$0
Manuel LubinusBoard Member19$0
Randy BerryBoard Member1$0
Marlene JansenBoard Member1$0
Mohammed HarrisBoard Member1$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Myositis Support and Understanding Association
EIN
474570748
Address
9125 N Old State Rd, Lincoln, DE, 19960-3654
State
Delaware
Mission
The mission of Myositis Support and Understanding Association Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research. (as filed on the Form 990)
Activity (NTEE)
H01 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
IRS ruling date
1 July 2015
Status
Code 01 (unconditional exemption)
Form 990 filings on record
4, latest 2023
IRS Publication 78
PC (contributions deductible)
Principal officer
Gerald L Williams Jr (Form 990-N, tax year 2017)

Most connected

Longest observed on the filings

≥6years on the filingsLynn Wilson
≥5years on the filingsBenita Moyers
≥3years on the filingsLauren Landman
≥3years on the filingsMauel Lubinus

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$217k
Total liabilities
$35k
Net assets or fund balances
$182k
Contributions and grants received
$415k
Program service revenue
$21k
Grants and similar paid out
$119k
Employees
0
Volunteers
36

Grants paid

2 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
The University of Texas at TylerResearch project on Fall Prevention in the IBM Myositis Community$25k
Speech Swallowing and Neurological Rehabilitation PLLCRespiratory muscle strength training for dysphasia$15k