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US nonprofit · EIN 474771677 · Cumming, GAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 474771677) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2016.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Sickle Cell Consortium

Donations deductible
Revenue
$1.4m
year to 31 December 2024
Expenses
$1.1m
year to 31 December 2024
Total assets
$418k
$0 liabilities
Net assets
$418k
assets less liabilities
Directors and trustees
4
5.9y av
Staff
0
21 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
7
named in Part VII
How am I connected?

Sickle Cell Consortium's network

4 peoplei4 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (4). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

4 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 7 voting members of its governing body on its latest Form 990 Part VI; we list 4 in Part VII (Part VII does not always name every voting member).
NameRole as filedSinceOn the board
Doris BaileyAssociate Finance Director2019
7 yrs
Eric NTI FrempongDirector of Finance2019
7 yrs
Lakiea BaileyExecutive Director2022
4 yrs
Sharonda HudsonDirector of Operations2022
4 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

7 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Dominique GoodsonAdministrative Director2024
Doris BaileyAssociate Finance Directorsince 2017
Dr Lakiea BaileyExecutive Director2017
Dr Ramona LawrenceDirector of Researchsince 2017
Eric NTI FrempongFinance Directorsince 2017
Janeen JV GreeneAdministrator2022
MIA RobinsonPresident of the General Assemblysince 2022

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Lakiea BaileyExecutive Director160$55k
Doris BaileyAssociate Finance Director160$31k
Sharonda HudsonDirector of Operations160$26k
Dominique GoodsonAdministrative Director160$17k
Mia RobinsonPresident of the General Assembly30$4k
Raymona Holloway LawrenceDirector of Research30$750
Eric Nti FrempongDirector of Finance10$0

About

Legal name
Sickle Cell Consortium
EIN
474771677
Address
Po Box 1195, Cumming, GA, 30028-1195
State
Georgia
Mission
To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy and legislation. Nothing for us without us. (as filed on the Form 990)
Activity (NTEE)
E01 Health care
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Health Care
Size band
4 (IRS master file code)
Formed
2013
Principal officer
Lakiea Bailey (as named on the Form 990)
IRS ruling date
1 August 2015
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsDoris Bailey
≥7years on the filingsEric NTI Frempong
≥4years on the filingsLakiea Bailey
≥4years on the filingsSharonda Hudson

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$418k
Total liabilities
$0
Net assets or fund balances
$418k
Contributions and grants received
$1.4m
Program service revenue
$0
Grants and similar paid out
$11k
Employees
0
Volunteers
21

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$1.4m$1.1m$294k

As filed on the IRS Form 990. US dollars.