Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United KingdomIrelandUnited States (current)New ZealandCanadaAustraliaScotlandNorthern Ireland
US nonprofit · EIN 510169988 · Palo Alto, CAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 510169988) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Cystic Fibrosis Research Institute

Donations deductible
Revenue
$2.1m
year to 31 December 2024
Expenses
$1.6m
year to 31 December 2024
Total assets
$4.2m
$30k liabilities
Net assets
$4.2m
assets less liabilities
Directors and trustees
13
7.6 years on average
Staff
7
150 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
1
named in Part VII
How am I connected?

Cystic Fibrosis Research Institute's network

13 peoplei13 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (13). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

13 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 13 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Ahmet UluerBoard Member2019
7 yrs
Arek PuziaBoard Member2018
8 yrs
Bill HultPresident2018
8 yrs
Doug Modlin PHD (also filed as Doug Modlin)Board Member2018
8 yrs
Elyse Elconin GoldbergBoard Member2018
8 yrs
Francine BionBoard Member2018
8 yrs
Jean HanleyBoard Member2020
6 yrs
Jessica MartensVice President2018
8 yrs
Julie DeschBoard Member2018
8 yrs
Oscar A FlamencoBoard Treasurer2018
8 yrs
Richard B MossBoard Member2018
8 yrs
Rohini Thukral McKeeBoard Member2024
2 yrs
Zoe DaviesBoard Secretary2019
7 yrs
Under 5 years5 to 6 years6 years or moreShow all 13 →

Officers and senior leadership

1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Siri VaethExecutive Directorsince 2019

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Siri VaethExecutive Director40$116k
Francine BionBoard Member1.5$0
Zoe DaviesBoard Secretary1.5$0
Julie DeschBoard Member1.5$0
Rohini Thukral McKeeBoard Member1.5$0
Oscar A FlamencoBoard Treasurer1.5$0
Elyse Elconin GoldbergBoard Member1.5$0
Jean HanleyBoard Member1.5$0
Bill HultPresident1.5$0
Jessica MartensVice President1.5$0
Doug ModlinBoard Member1.5$0
Richard B MossBoard Member1.5$0
Arek PuziaBoard Member1.5$0
Ahmet UluerBoard Member1.5$0

About

Legal name
Cystic Fibrosis Research Institute
EIN
510169988
Address
1731 Embarcadero Rd Ste 210, Palo Alto, CA, 94303-3339
State
California
Mission
To fund cystic fibrosis research, provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease. (as filed on the Form 990)
Activity (NTEE)
H24Z Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
6 (IRS master file code)
Formed
1975
Principal officer
Bill Hult (as named on the Form 990)
IRS ruling date
1 December 1975
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsArek Puzia
≥8years on the filingsBill Hult
≥8years on the filingsDoug Modlin PHD
≥8years on the filingsElyse Elconin Goldberg

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$4.2m
Total liabilities
$30k
Net assets or fund balances
$4.2m
Contributions and grants received
$1.9m
Program service revenue
$14k
Grants and similar paid out
$529k
Employees
7
Volunteers
150

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$2.1m$1.6m$462k

As filed on the IRS Form 990. US dollars.

Grants paid

8 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Yale University School of MedicineNew horizons research project$70k
Yale University School of MedicineNew horizons research project$70k
University of California IrvineNew horizons research project$70k
University of IowaNew horizons research project$70k
University of PittsburghNew horizons research project$70k
The Board of Trustees of the Leland Stanford Jr UniversityElizabeth nash memorial post-doctoral fellowship program$65k
The Board of Trustees of the Leland Stanford Jr UniversityElizabeth nash memorial post-doctoral fellowship program$65k
University of California Los AngelesElizabeth nash memorial post-doctoral fellowship program$65k

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Cystic Fibrosis Research Institute likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Texas Comptroller of Public Accounts, entity data (data.texas.gov 9cir-efmm). Licence not stated. Data last fetched 18 October 2026.
State
Texas
Status
Not stated
Formed
Not stated
Registered agent
Not stated

This register does not publish officers or directors.