The Marfan Foundation Inc
Donations deductibleThe Marfan Foundation Inc's network
21 people1 organisationi21 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (21). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
21 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 21 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Bert Medina Chair | Chair | 2019 | 7 yrs |
| Cory A Eaves Chair (also filed as Cory Eaves) | Immediate Past Chair | 2019 | 7 yrs |
| Alan Braverman MD | Director | 2019 | 7 yrs |
| Andrew Toy | Director | 2023 | 3 yrs |
| Anthony Yasick MD (also filed as Anthony Yasick) | Director | 2020 | 6 yrs |
| Brandy Banks Hotchkiss | Director | 2024 | 2 yrs |
| Caryn E Kauffman CPA (also filed as Caryn Kauffman CPA) | Treasurer | 2019 | 7 yrs |
| David Warren | Director | 2020 | 6 yrs |
| Dawn Reiner | Director | 2021 | 5 yrs |
| Gary Kauffman | Director | 2019 | 7 yrs |
| GIL Bashe | Director | 2024 | 2 yrs |
| James Prutow | Director | 2021 | 5 yrs |
| Jeffrey C Lesage | Director | 2019 | 7 yrs |
| Jerry L Lerman (also filed as Jerry Lerman) | Director | 2020 | 6 yrs |
| Joaquin Ramos JR | Director | 2024 | 2 yrs |
| Jon Tullis | Director | 2019 | 7 yrs |
| Juan Bowen MD | Director | 2021 | 5 yrs |
| Patricia McCabe Estrada | Company secretary | 2019 | 7 yrs |
| Ray Chevallier | Director | 2021 | 5 yrs |
| Scott D Avitabile ESQ (also filed as Scott Avitabile) | Director | 2019 | 7 yrs |
| Sinclair LI | Director | 2019 | 7 yrs |
Officers and senior leadership
10 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Eileen J Masciale | Chief Program Officer | since 2019 |
| Eileen Novins | Chief Global Business Devel. Officer | 2024 |
| Helaine Baruch | Chief Development Officer | since 2019 |
| Inderjeet Kaur CPA | Sr. Director of Finance & HR | since 2019 |
| Josephine Grima | Chief Science Officer | since 2019 |
| Judith Gibaldi | COO | since 2019 |
| Kimberly K Huddleston | VP. of Development | since 2023 |
| Lauren E May | Director of Research | since 2023 |
| Michael L Weamer | President/CEO | since 2019 |
| Susan Leshen | Sr. Director of Patient and Program | since 2019 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michael L Weamer | Pres/CEO | 35 | $475k | $28k | |
| Helaine Baruch | Chief Development Officer | 35 | $250k | $18k | |
| Josephine Grima | Chief Science Officer | 35 | $210k | $18k | |
| Eileen Novins | Chief Program Officer | 35 | $194k | $18k | |
| Inderjeet Kaur CPA | Chief Financial Officer | 35 | $168k | $18k | |
| Kimberly K Huddleston | VP. of Development | 35 | $138k | $326 | |
| Lauren E May | Director of Research | 35 | $132k | $326 | |
| Judith Gibaldi | Chief Operations Officer | 35 | $125k | $28k | |
| Bert Medina | Chair | 8 | $0 | ||
| Cory A Eaves | Immediate Past Chair | 1 | $0 | ||
| Caryn E Kauffman CPA | Treasurer | 3 | $0 | ||
| Patricia McCabe Estrada | Secretary | 1 | $0 | ||
| Scott D Avitabile Esq | Director | 1 | $0 | ||
| Gil Bashe | Director | 1 | $0 | ||
| Juan Bowen MD | Director | 1 | $0 | ||
| Alan Braverman MD | Director | 1 | $0 | ||
| Duke Cameron MD | Director | 1 | $0 | ||
| Ray Chevallier | Director | 1 | $0 | ||
| Brandy Banks Hotchkiss | Director | 1 | $0 | ||
| Gary Kauffman | Director | 1 | $0 | ||
| Jerry L Lerman | Director | 1 | $0 | ||
| Jeffrey C Lesage | Director | 1 | $0 | ||
| Sinclair Li | Director | 1 | $0 | ||
| Bryan Maher | Director | 1 | $0 | ||
| Jess Milburn | Director | 1 | $0 | ||
| James Prutow | Director | 1 | $0 | ||
| Joaquin Ramos Jr | Director | 1 | $0 | ||
| Dawn Reiner | Director | 1 | $0 | ||
| Andrew Toy | Director | 1 | $0 | ||
| Jon R Tullis | Director | 1 | $0 | ||
| David Warren | Director | 1 | $0 | ||
| Anthony Yasick MD | Director | 1 | $0 |
Colorado roster
29 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263004576). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Cory Eaves | Immediate Past Chair |
| Caryn Kauffman, CPA | Treasurer |
| Gary Kauffman | Director |
| Karen Murray | Members-at-Large |
| Michael L. Weamer | President & CEO |
| Jon Tullis | Director |
| Duke Cameron, MD | Members-at-Large |
| James Prutow | Director |
| Sinclair Li | Director |
| Gil Bashe | Members-at-Large |
| Juan Bowen, MD | Members-at-Large |
| Anthony Yasick, MD | Director |
| Jerry L. Lerman | Director |
| Alix McLean Jennings | Director |
| Inderjeet Kaur | |
| Jeffrey Lesage | Director |
| Joaquin Ramos, Jr. | Members-at-Large |
| Scott Avitabile, Esq. | Members-at-Large |
| Bryan Maher | Members-at-Large |
| Alan Braverman, MD | Members-at-Large |
| Bert Medina | President and CEO |
| Bert Medina | Chair |
| Brandy Banks Hotchkiss | Members-at-Large |
| Inderjeet Kaur | CFO |
| Patricia McCabe | Secretary |
| Raymond Chevallier | Director |
| David Warren | Director |
| Andrew Toy | Director |
| Jess Milburn | Members-at-Large |
About
- Legal name
- The Marfan Foundation Inc
- EIN
- 521265361
- Address
- 22 Manhasset Ave, PRT Washingtn, NY, 11050-2023
- State
- New York
- Mission
- (as filed on the Form 990)
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Size band
- 8 (IRS master file code)
- Formed
- 1981
- Principal officer
- Michael L Weamer (as named on the Form 990)
- IRS ruling date
- 1 November 1982
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsBert Medina
≥7years on the filingsCory A Eaves
≥7years on the filingsAlan Braverman MD
≥7years on the filingsCaryn E Kauffman CPA
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $19.5m
- Total liabilities
- $2.7m
- Net assets or fund balances
- $16.9m
- Contributions and grants received
- $6.9m
- Program service revenue
- $34k
- Grants and similar paid out
- $1.5m
- Employees
- 30
- Volunteers
- 510
Grants paid
6 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Stanford University School of Medicine | $370k | |
| Johns Hopkins University School of Medicine | $365k | |
| Icahn School of Medicine at Mount Sinai | $100k | |
| The Regents of the University of California - Los Angeles | $100k | |
| Yale University | $100k | |
| Lyon Family Foundation | $10k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.The Marfan Foundation, Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
- State
- New York
- Entity type
- Foreign Not-For-Profit Corporation
- Status
- Active
- Formed
- 20 November 2002
- Registered agent
- Not stated