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Governance Register
US nonprofit · EIN 521959601 · Sterling, MAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 521959601) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

The Mast Cell Disease Society Inc's network

8 peoplei8 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Judith Emmel ChairChair2022
4 yrs
Ariella Cohen ColemanDirector at Large2023
3 yrs
Celeste FinnertyVice Chair2020
6 yrs
Cole ShoemakerDirector at Large2024
2 yrs
Courtney RabbEx Vice Chair2018
8 yrs
Jennifer Nicoloro-SantabarbaraCompany secretary2022
4 yrs
Jessica FraserExecutive Director2023
3 yrs
Rosemary SchultzInterim Treasurer2022
4 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Jessica FraserExecutive Director20$100k$8k
Celeste FinnertyVice Chair20$0
Jennifer Nicoloro-SantabarbaraSecretary1$0
Courtney RabbEx Vice Chair5$0
Rosemary SchultzInterim Treasurer10$0
Judith EmmelChair20$0
Ariella Cohen ColemanDirector at Large20$0
Cole ShoemakerDirector at Large20$0

About

Legal name
The Mast Cell Disease Society Inc
EIN
521959601
Address
153 Clinton Rd Box 416, Sterling, MA, 01564-2357
State
Massachusetts
Mission
The mast cell disease society, inc is dedicated to providing multi-faceted support to patients, families, and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy, and collaboration. (as filed on the Form 990)
Activity (NTEE)
F60 Mental health and crisis intervention
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Mental Health & Crisis Intervention
Size band
5 (IRS master file code)
Formed
1994
Principal officer
Judith Emmel (as named on the Form 990)
IRS ruling date
1 April 1997
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsCourtney Rabb
≥6years on the filingsCeleste Finnerty
≥4years on the filingsJudith Emmel
≥4years on the filingsJennifer Nicoloro-Santabarbara

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$988k
Total liabilities
$28k
Net assets or fund balances
$960k
Contributions and grants received
$453k
Program service revenue
$52k
Employees
5
Volunteers
31

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$516k$619kDeficit $103k

As filed on the IRS Form 990. US dollars.