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Governance Register
US nonprofit · EIN 562547779 · Boston, MAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 562547779) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Northeast ALS Consortium Inc's network

11 people1 organisationi11 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (11). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

11 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Jeffrey Rothsteinmdphd ChairSab, Chair2018
8 yrs
Robert H Brownmd Dphil ChairSab, Chair2018
8 yrs
Timothy Miller MD PHD ChairSab, Chair2020
6 yrs
Christina FournierInvestigator Member2024
2 yrs
Gale KittleClinical Evaluator Member2022
4 yrs
James BerryCo-Chair2018
8 yrs
Jinsy Andrews MD MSCCo-Chair2020
6 yrs
Matthew HarmsInvestigator Member2022
4 yrs
Nicole TurcotteCoordinator Member2022
4 yrs
Sabrina PaganoniInvestigator Member2022
4 yrs
Zachary SimmonsInvestigator Member2022
4 yrs
Under 5 years5 to 6 years6 years or moreShow all 11 →

Officers and senior leadership

2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Carly AllenDirector of Operation2024
Tara LincolnDirector of Operationssince 2018

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Robert H Brownmd DphilSab, Chair1$0
Gale KittleClinical Evaluator Member1$0
Jeffrey RothsteinmdphdSab, Chair1$0
Timothy Miller MD PhDSab, Chair1$0
Jinsy Andrews MD MSCCo-Chair5$0
Christina FournierInvestigator Member1$0
Nicole TurcotteCoordinator Member1$0
Matthew HarmsInvestigator Member1$0
Sabrina PaganoniInvestigator Member1$0
Zachary SimmonsInvestigator Member1$0
James BerryCo-Chair5$0
Carly AllenDirector of Operation40$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Northeast Als Consortium Inc
EIN
562547779
Address
200 Portland Street 5th Floor, Boston, MA, 02114-1722
State
Massachusetts
Mission
The mission of north east als consortium (neals) is to translate scientific advances into clincical research and new treatments for people with amyotrophic lateral sclerosis (als) and motor neuron disease (mnd) as rapidly as possible. (as filed on the Form 990)
Activity (NTEE)
H80 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
6 (IRS master file code)
Formed
2005
Principal officer
Carly Allen (as named on the Form 990)
IRS ruling date
1 May 2008
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsJeffrey Rothsteinmdphd
≥8years on the filingsRobert H Brownmd Dphil
≥8years on the filingsJames Berry
≥6years on the filingsTimothy Miller MD PHD

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$3.1m
Total liabilities
$252k
Net assets or fund balances
$2.8m
Contributions and grants received
$1.1m
Program service revenue
$954k
Employees
0
Volunteers
11

Filed finances

2 yearsiTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$2.1m$555k$1.5m
2023$1.3m$1.1m$278k

As filed on the IRS Form 990. US dollars.