Lighthouse Lymphedema Support Group
Donations deductibleRevenue
$37k
year to 31 December 2025
Expenses
$33k
year to 31 December 2025
Total assets
$123k
$0 liabilities
Net assets
$123k
assets less liabilities
Directors and trustees
22
4.9 years on average
Chair observed
≥3 yrs
Vicky Day
Left since last filing
0
no seats appear to have opened
Officers and senior staff
1
named in Part VII
Lighthouse Lymphedema Support Group's network
22 people5 organisationsi22 people and 5 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (22). Violet dotted lines (5) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
22 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 23 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Vicky Day Chair | Event Chair | 2021 | 5 yrs |
| Beverly Thompson | Conference, Special Events | 2021 | 5 yrs |
| Bret Martin | Website Adminstrator | 2021 | 5 yrs |
| DEB Cozzone | Database Adminstrator | 2021 | 5 yrs |
| Debbie Labarthe | Secretary, Facebook | 2020 | 6 yrs |
| Dolores Bradley Brennan PHD | Strategic Plan, Webinar | 2023 | 3 yrs |
| Ellen Frank | Compressions Donations | 2021 | 5 yrs |
| Francine Schwartz Schuler | Treasurer, Limpedema Liaison | 2023 | 3 yrs |
| Frank Aviles JR | Speakers Committee | 2023 | 3 yrs |
| Jackie Echols | Health and Wellness, Conference | 2021 | 5 yrs |
| Janie Smith | Bandages & Garment Fund Admin | 2021 | 5 yrs |
| Joan White | Executive Director | 2021 | 5 yrs |
| Keith Moore | Speakers Committee | 2023 | 3 yrs |
| Latora Davis | Conference | 2023 | 3 yrs |
| Laura Hoffman | Insurance Advisor, Health and Welln | 2021 | 5 yrs |
| Peggy Meyer | Conference and Special Events | 2021 | 5 yrs |
| Rebecca Hammad | Bandages and Garment Fund, Fund Dev | 2021 | 5 yrs |
| Samantha Cannon Martin (also filed as Samantha Martin) | Health & Wellness, Conf, Therapists | 2021 | 5 yrs |
| Sandra Dupree | Speakers Committe, Lipedema Liaison | 2023 | 3 yrs |
| Sharon Shepard | Newsletter Editor | 2021 | 5 yrs |
| Shelley Smith Dicecco PHD (also filed as Shelley Dicecco PHD, Shelley Smith Dicecco) | Speakers Committee, Webinar,Grant | 2021 | 5 yrs |
| Stacy Saraydar | Conference | 2021 | 5 yrs |
Officers and senior leadership
1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Joan White | Executive Director | 2020 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Janie Smith | Bandages & Garment Fund Admin | 0 | $0 | ||
| Debbie Labarthe | Communications Co-Director | 0 | $0 | ||
| Francine Schwartz Schuler | Finance Director | 0 | $0 | ||
| Bret Martin | Website Adminstrator | 0 | $0 | ||
| Dolores Bradley Brennan Ph D | Strategic Plan, Webinar | 0 | $0 | ||
| Deb Cozzone | Database Adminstrator | 0 | $0 | ||
| Vicky Day | Event Chair | 0 | $0 | ||
| Shelley Smith Dicecco Ph D | Medical Contact Director | 0 | $0 | ||
| Jackie Echols | Health and Wellness, Conferenc | 0 | $0 | ||
| Ellen Frank | Compressions Donations | 0 | $0 | ||
| Latora Davis | Cota,CLT | 0 | $0 | ||
| Rebecca Hammad | Bandages and Garment Fund, Fun | 0 | $0 | ||
| Laura Hoffman | Insurance Advisor, Health and | 0 | $0 | ||
| Peggy Meyer | Conference and Special Events | 0 | $0 | ||
| Samantha Cannon Martin | Community Liaison Director | 0 | $0 | ||
| Sharon Shepard | Newsletter Editor | 0 | $0 | ||
| Stacy Saraydar | Conference | 0 | $0 | ||
| Keith Moore | Speakers Committee | 0 | $0 | ||
| Beverly Thompson | Conference, Special Events | 0 | $0 | ||
| Frank Aviles Jr | Speakers Committee | 0 | $0 | ||
| Sandra Dupree | Lipedema Liaison | 0 | $0 | ||
| Maureen Clark | Coordinator A Wellness Pl | 0 | $0 | ||
| Joan White | Founder/Posthumous Emeritus | 0 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Lighthouse Lymphedema Support Group
- EIN
- 582301746
- Address
- 5290 Matt Highway, Cumming, GA, 30028-8629
- State
- Georgia
- Activity (NTEE)
- E70 Health care
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Health Care
- Size band
- 4 (IRS master file code)
- IRS ruling date
- 1 March 2001
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2024
- IRS Publication 78
- PC (contributions deductible)
- Principal officer
- Joan White (Form 990-N, tax year 2012)
Most connected
Longest observed on the filings
≥6years on the filingsDebbie Labarthe
≥5years on the filingsVicky Day
≥5years on the filingsBeverly Thompson
≥5years on the filingsBret Martin
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $123k
- Total liabilities
- $0
- Net assets or fund balances
- $123k
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $42k | $35k | $7k |
As filed on the IRS Form 990. US dollars.