Central Florida Down Syndrome Association Inc
Donations deductibleCentral Florida Down Syndrome Association Inc's network
12 people4 organisationsi12 people and 4 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (12). Violet dotted lines (4) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
12 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 12 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Troy Culley Chair | Chair | 2020 | 6 yrs |
| Ben Strombeck (also filed as Ben Strombeck) | Director | 2023 | 3 yrs |
| Cory Aspelieter | Director | 2019 | 7 yrs |
| Candace Whiting | Director | 2025 | 1 yr |
| Chris McVay | Director | 2025 | 1 yr |
| Christina Bock | Director | 2025 | 1 yr |
| Jeff Goodman | Director | 2021 | 5 yrs |
| Marc Miller | Director | 2025 | 1 yr |
| Mary Beth Eliason | Company secretary | 2025 | 1 yr |
| Patricia Lewis | Director | 2020 | 6 yrs |
| Rebecca Samaan | Director | 2025 | 1 yr |
| ZAK Sultan (also filed as Zak Sultan) | Treasurer | 2021 | 5 yrs |
Officers and senior leadership
9 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Amy Drow | Interim Exec | 2019 |
| Cynthia Williams Through 720 | Interim Executive Director | 2020 |
| Heather Barnes | Executive Director | since 2021 |
| Heather Barnes from 720 | Executive Director | 2020 |
| Janet Caramello | Executive Di | 2018 |
| Janet Caramello ED Through 1719 | Executive Di | 2019 |
| Part VII IS 2017 Calendar Year Comp | (2017 Forms | 2018 |
| Part VII IS 2018 Calendar Year Comp | (2018 Forms | 2019 |
| ZAK Sultan | Company secretary | 2023 |
Pay and hours
year to 31 July 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Heather Barnes | Executive Director | 40 | $116k | ||
| Cory Aspelieter | Director | 5 | $0 | ||
| Marc Miller | Director | 5 | $0 | ||
| Christina Bock | Director | 5 | $0 | ||
| Rebecca Samaan | Director | 5 | $0 | ||
| Jeff Goodman | Director | 5 | $0 | ||
| Ben Strombeck | Director | 5 | $0 | ||
| Patricia Lewis | Director | 5 | $0 | ||
| Candace Whiting | Director | 5 | $0 | ||
| Chris McVay | Director | 5 | $0 | ||
| Troy Culley | Chair | 10 | $0 | ||
| Mary Beth Eliason | Secretary | 10 | $0 | ||
| Zak Sultan | Treasurer | 10 | $0 |
About
- Legal name
- Central Florida Down Syndrome Association Inc
- EIN
- 593124673
- Address
- 204 N Wymore Rd, Winter Park, FL, 32789-3455
- State
- Florida
- Mission
- To change what is possible for people with down syndrome through programs, resources, and advocacy (as filed on the Form 990)
- Activity (NTEE)
- P20Z Human services
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Human Services
- Size band
- 6 (IRS master file code)
- Formed
- 1992
- Principal officer
- Heather Barnes (as named on the Form 990)
- IRS ruling date
- 1 June 1998
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsCory Aspelieter
≥6years on the filingsTroy Culley
≥6years on the filingsPatricia Lewis
≥5years on the filingsJeff Goodman
Latest return
year to 31 July 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 July 2025. US dollars, as filed.- Total assets
- $2.3m
- Total liabilities
- $427k
- Net assets or fund balances
- $1.8m
- Contributions and grants received
- $667k
- Program service revenue
- $0
- Grants and similar paid out
- $43k
- Employees
- 6
- Volunteers
- 276
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $665k | $678k | Deficit $13k |
As filed on the IRS Form 990. US dollars.