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Governance Register
US nonprofit · EIN 660423489 · Bayamon, PRiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 660423489) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 30 June 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Spina Bifida & Hidrocephalus Association of Puerto Rico Inc's network

10 peoplei10 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 12 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
ANA C Mercado MatiasVocal2022
4 yrs
Brendaliz Rosado FigueroaSecretaria2023
3 yrs
Ileana Colon RiveraTreasurer2021
5 yrs
Javier Rodriguez TorresVocal2023
3 yrs
Maribel Roman MoralesPresident2021
5 yrs
Ricardo Oquendo MelendezVice President2023
3 yrs
Rosamar Bauza OteroVocal2023
3 yrs
Telly MAR Pineiro RomeroVocal2022
4 yrs
Yesenia Gonzalez LizardiVocal2023
3 yrs
Zuleika Ramos ColonVocal2023
3 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

13 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
ANA C Mercado MatiasVocal2025
Enida V Padua SantiagoVocal2025
Ileana Colon RiveraPresidenta2025
Jeyssica Valentin RomanVicepresidenta2025
Loida E Benitez ArroyoVocal2025
Maria Carmen Mercado MirandaTesorera2025
Marie Carmen Mercado MirandaTesorera2025
Nicole A Rodriguez ColonVocal2025
Ruth M Rodriguez CuevasVocal2025
Tania Reyes DiazSecretaria2025
Telly MAR Pineiro RomeroVocal2025
Yesenia Gonzalez LizardiVocal2025
Zuleika Ramos ColonVocal2025

Pay and hours

year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Ileana Colon RiveraPresidenta1$0
Jeyssica Valentin RomanVicepresidenta1$0
Marie Carmen Mercado MirandaTesorera1$0
Tania Reyes DiazSecretaria1$0
Loida E Benitez ArroyoVocal1$0
Yesenia Gonzalez LizardiVocal1$0
Ana C Mercado MatiasVocal1$0
Enida V Padua SantiagoVocal1$0
Telly Mar Pineiro RomeroVocal1$0
Zuleika Ramos ColonVocal1$0
Nicole A Rodriguez ColonVocal1$0
Ruth M Rodriguez CuevasVocal1$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Spina Bifida & Hidrocephalus Association of Puerto Rico Inc
EIN
660423489
Address
Po Box 8262, Bayamon, PR, 00960-8262
State
Puerto Rico
Mission
Provides professional medical assistance to children with spina bifida and hydrocephalus conditions. Donates supplies and equipment to affected Childs and trin their parents teachers and other relative. (as filed on the Form 990)
Activity (NTEE)
G20 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
4 (IRS master file code)
Formed
1977
Principal officer
Lylette Aviles Rios (as named on the Form 990)
IRS ruling date
1 May 2000
Status
Code 01 (unconditional exemption)
Form 990 filings on record
4, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥5years on the filingsIleana Colon Rivera
≥5years on the filingsMaribel Roman Morales
≥4years on the filingsANA C Mercado Matias
≥4years on the filingsTelly MAR Pineiro Romero

Latest return

year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.
Total assets
$230k
Total liabilities
$1k
Net assets or fund balances
$228k
Contributions and grants received
$172k
Program service revenue
$0
Employees
8

Filed finances

2 yearsiTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$246k$244k$2k
2022$223k$269kDeficit $46k

As filed on the IRS Form 990. US dollars.