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US nonprofit · EIN 742827829 · Wichita, KSiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 742827829) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Exemption status IRS Automatic Revocation of Exemption List (posted to 13 October 2026).Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Hereditary Neurological Disease Centre Inc

Donations deductible
Revenue
$746k
year to 31 December 2025
Expenses
$850k
year to 31 December 2025
Total assets
$1.1m
$153k liabilities
Net assets
$996k
assets less liabilities
Directors and trustees
9
7.2 years on average
Staff
6
employees, year to 31 December 2025
Chair observed
≥7 yrs
Lewis R Blackwell
Left since last filing
3
33% of the board
Exemption reinstated on 15 May 2024. The IRS had automatically revoked it on 15 May 2024 (after three years without a return). Source: IRS Automatic Revocation of Exemption List, posted to 13 October 2026.
How am I connected?

Hereditary Neurological Disease Centre Inc's network

9 people1 organisationi9 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (9). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

9 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Lewis R Blackwell Chair (also filed as Lewis Blackwell)Chair2018
8 yrs
Cheryl J Bish (also filed as Cheryl Bish)Vice Chair2018
8 yrs
Christopher W Wolgamott (also filed as Christopher Wolgamott)Board Member2018
8 yrs
Clark BoyerBoard Member2018
8 yrs
Heather HansonBoard Member2020
6 yrs
Richard L Anderson (also filed as Richard Anderson)Secretarytreasurer2018
8 yrs
Rosalee SarachekBoard Member2018
8 yrs
Tammy FoulstonBoard Member2025
1 yr
Ted FarhaBoard Member2020
6 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Gregory SuterExecutive Directorsince 2024

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Cheryl BishVice Chair0$0
Ted FarhaBoard Member0$0
Rosalee SarachekBoard Member0$0
Christopher WolgamottBoard Member0$0
Clark BoyerBoard Member0$0
Heather HansonBoard Member0$0
Tammy FoulstonBoard Member0$0
Lewis BlackwellChair0$0
Richard AndersonSecretarytreasurer0$0
Gregory SuterExecutive Director40$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Hereditary Neurological Disease Centre Inc
EIN
742827829
Address
9300 E 29th St N Ste 350, Wichita, KS, 67226-2179
State
Kansas
Mission
Provide diagnostic care and disease management to patients and their families dealing with huntingtons disease - no cost to patient or family (as filed on the Form 990)
Activity (NTEE)
G80 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
6 (IRS master file code)
Formed
1997
IRS ruling date
1 April 2025
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsLewis R Blackwell
≥8years on the filingsCheryl J Bish
≥8years on the filingsChristopher W Wolgamott
≥8years on the filingsClark Boyer

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$1.1m
Total liabilities
$153k
Net assets or fund balances
$996k
Contributions and grants received
$695k
Program service revenue
$0
Employees
6