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Governance Register
US nonprofit · EIN 742926378 · Chicago, ILiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 742926378) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 July 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2012.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Mission MSA's network

14 people2 organisationsi14 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (14). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

14 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 14 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Liz Dyas Chair (also filed as Liz Dyas)Chair2021
5 yrs
Adrienne Glusman MariolesDirector2022
4 yrs
Amy CooperDirector2025
1 yr
Andre Cote BarchDirector2022
4 yrs
Dawn Rodgers-DexterTreasurer2022
4 yrs
Gary TroutmanDirector2022
4 yrs
Hasan HasanDirector2025
1 yr
Josh LaunerDirector2025
1 yr
Kate AlivariusDirector2025
1 yr
PAM Bower (also filed as Pam Bower)Director2018
8 yrs
Patricia Libby ThvedtCompany secretary2021
5 yrs
Paul BeachDirector2025
1 yr
Prof Dr Nadia StefanovaDirector2025
1 yr
William Billy FinnertyDirector2022
4 yrs
Under 5 years5 to 6 years6 years or moreShow all 14 →

Officers and senior leadership

2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Joseph LindahlExecutive Dir.since 2022
Sheila LyonsExecutive Director (Since 11/10/20)since 2020

Pay and hours

year to 31 July 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Joseph LindahlExecutive Dir.40$91k
Liz DyasChair20$0
Dawn Rodgers-DexterTreasurer15$0
Patricia Libby ThvedtSecretary20$0
Pam BowerDirector2$0
Adrienne Glusman MariolesDirector2$0
Andre Cote BarchDirector2$0
Gary TroutmanDirector2$0
William Billy FinnertyDirector2$0
Prof Dr Nadia StefanovaDirector2$0
Josh LaunerDirector2$0
Amy CooperDirector2$0
Kate AlivariusDirector2$0
Hasan HasanDirector2$0
Paul BeachDirector2$0

Colorado roster

15 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20243035901). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Dawn Rodgers-DexterTreasurer
Alan SmallyDirector
Bower PamelaChair
Cynthia RoemerImmediate Past Chair
Pamela BowerChair
Josepth LindahlChief Executive Officer
Adrienne Glusman MariolesDirector
Larry KellermanDirector
William FinnertyDirector
Vikram KhuranaDirector
Patricia Libby ThvedtSecretary
Gary TroutmanDirector
Andre Cote BarchDirector
Liz DyasDirector
Cecilia Mason

About

Legal name
Mission Msa
EIN
742926378
Address
540 N Dearborn St Unit 101196, Chicago, IL, 60610-1087
State
Illinois
Mission
The multiple system atrophy coalition provides trusted emotional support, education, research funding, and sense of community for people living with multiple system atrophy; enhancing quality of life and collaboratively building hope. (as filed on the Form 990)
Activity (NTEE)
G80 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
6 (IRS master file code)
Formed
1999
IRS ruling date
1 July 2001
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2025
IRS Publication 78
PC (contributions deductible)
Principal officer
Donald Crouse (Form 990-N, tax year 2012)

Most connected

Longest observed on the filings

≥8years on the filingsPAM Bower
≥5years on the filingsLiz Dyas
≥5years on the filingsPatricia Libby Thvedt
≥4years on the filingsAdrienne Glusman Marioles

Latest return

year to 31 July 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 July 2025. US dollars, as filed.
Total assets
$5m
Total liabilities
$162k
Net assets or fund balances
$4.8m
Contributions and grants received
$1.2m
Program service revenue
$415k
Grants and similar paid out
$364k
Employees
0
Volunteers
668

Grants paid

15 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
University of FloridaMSA Research$106k
Others Under 5000 EachMSA Research$16k
New York UniversityMSA Research$10k
Brigham and Womens HospitalMSA Research$8k
Emory UniversityMSA Research$8k
Massachusetts General HospitaMSA Research$8k
Rush University Medical CenteMSA Research$8k
University of MiamiMSA Research$8k
University of North CarolinaMSA Research$8k
University of Texas SouthwestMSA Research$8k
University of UtahMSA Research$8k
University of VirginiaMSA Research$8k
Virginia Commonwealth UniversMSA Research$8k
Washington UniversityMSA Research$8k
Yale UniversityMSA Research$8k