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Governance Register
US nonprofit · EIN 770355224 · Tucson, AZiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 770355224) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 30 June 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

American Fibromyalgia Syndrome Association Inc's network

4 peoplei4 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (4). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

4 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 4 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Brent SongerDirector2022
4 yrs
Jennifer E RandleChief Financial Officer2022
4 yrs
Kristin ThorsonPresident2018
8 yrs
Steve ThorsonVice President & Secretary2018
8 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Kristin ThorsonPresident40$0
Steve ThorsonVice President & Secretary15$0
Jennifer E RandleChief Financial Officer0.2$0
Brent SongerDirector0.2$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
American Fibromyalgia Syndrome Association Inc
EIN
770355224
Address
Po Box 32698, Tucson, AZ, 85751-2698
State
Arizona
Mission
The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life. (as filed on the Form 990)
Activity (NTEE)
H99Z Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
5 (IRS master file code)
Formed
1993
Principal officer
Kristin Thorson (as named on the Form 990)
IRS ruling date
1 January 1994
Status
Code 01 (unconditional exemption)
Form 990 filings on record
8, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsKristin Thorson
≥8years on the filingsSteve Thorson
≥4years on the filingsBrent Songer
≥4years on the filingsJennifer E Randle

Latest return

year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.
Total assets
$873k
Total liabilities
$90k
Net assets or fund balances
$783k
Contributions and grants received
$22k
Program service revenue
$0
Grants and similar paid out
$153k
Employees
0
Volunteers
4

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$52k$171kDeficit $119k

As filed on the IRS Form 990. US dollars.