Cure Lgmd2I Foundation
Donations deductibleRevenue
$223k
year to 31 December 2024
Expenses
$416k
year to 31 December 2024
Total assets
$361k
$3k liabilities
Net assets
$358k
assets less liabilities
Directors and trustees
3
6.4 years on average
Staff
1
12 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
9
named in Part VII
Cure Lgmd2I Foundation's network
3 peoplei3 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 5 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Kate Zaccariello | Treasurer | 2020 | 6 yrs |
| Keith G Brazzo (also filed as Keith Brazzo) | Vice-President | 2020 | 6 yrs |
| Kristen Olsen | Company secretary | 2020 | 6 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
9 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Dan Pope | Vice-President | 2024 |
| Dr Herb Stevenson | Medical Director | since 2020 |
| Dr Jean Pierre Laurent | Scientific Director | 2024 |
| John Spencer | Creative Director/Executive Board Member | 2024 |
| Kaitlyn Neroladakis | Communications Director/Executive Board Member | 2024 |
| Kate Zaccariello | Treasurer | since 2022 |
| Keith G Brazzo | Vice-President | since 2022 |
| Kelly Brazzo | President/CEO | since 2020 |
| Kristen Olsen | Secretary/Treasurer | since 2022 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Kelly Brazzo | President/CEO | 5 | $45k | ||
| Dan Pope | Vice-President | 5 | $0 | ||
| Kristen Olsen | Secretary/Treasurer | 1 | $0 | ||
| John Spencer | Creative Director/Executive Board Member | 1 | $0 | ||
| Dr Jean Pierre Laurent | Scientific Director | 1 | $0 | ||
| Kaitlyn Neroladakis | Communications Director/Executive Board Member | 1 | $0 |
Colorado roster
6 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20243013918). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| John Spencer | Board Member |
| Kaitlyn Neroladakis | Communications Director |
| Kelly Brazzo | |
| Kelly Brazzo | President |
| Kristen Olsen | Secretary/Treasurer |
| Daniel Pope | Vice President |
About
- Legal name
- Cure Lgmd2i Foundation
- EIN
- 800680447
- Address
- 4028 Marietta Ave, Columbia, PA, 17512-8901
- State
- Pennsylvania
- Mission
- Fund research for cure of limb girdle muscular dystrophy (as filed on the Form 990)
- Activity (NTEE)
- P40 Human services
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Human Services
- Size band
- 4 (IRS master file code)
- Formed
- 2011
- Principal officer
- Kelly Brazzo (as named on the Form 990)
- IRS ruling date
- 1 August 2011
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 1, latest 2020
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥6years on the filingsKate Zaccariello
≥6years on the filingsKeith G Brazzo
≥6years on the filingsKristen Olsen
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $361k
- Total liabilities
- $3k
- Net assets or fund balances
- $358k
- Contributions and grants received
- $184k
- Program service revenue
- $0
- Grants and similar paid out
- $264k
- Employees
- 1
- Volunteers
- 12
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $223k | $416k | Deficit $193k |
As filed on the IRS Form 990. US dollars.
Grants paid
5 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Umass Chan Medical School | Lgmd2i therapeutics for fkrp gene correction via prime | $23k |
| The Speak Foundation | 2025 international lgmd conference | $15k |
| University of Iowa | Dystroglycanopathy patient and family conference | $10k |
| LGMD Awareness Foundation | 10th annual lgmd awareness day sponsorship | $7k |
| Nationwide Children's Hospital | Novel gene therapy | $0 |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Cure Lgmd2i Foundation likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Pennsylvania Department of State, business entities (data.pa.gov xvd7-5r2c). Licence: public domain. Data last fetched 18 October 2026.
- State
- Pennsylvania
- Entity type
- Domestic Nonprofit Corporation
- Status
- Active
- Formed
- 18 April 2011
- Registered agent
- Not stated
Officers (4)
- Dan Pope Vice President
- Kelly J Brazzo Governor
- Kelly J Brazzo President
- Kristen Olsen Secretary
City and state of officers are not held in this extract.