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Governance Register
US nonprofit · EIN 800680447 · Columbia, PAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 800680447) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Cure Lgmd2I Foundation's network

3 peoplei3 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (3). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

3 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 5 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Kate ZaccarielloTreasurer2020
6 yrs
Keith G Brazzo (also filed as Keith Brazzo)Vice-President2020
6 yrs
Kristen OlsenCompany secretary2020
6 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

9 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Dan PopeVice-President2024
Dr Herb StevensonMedical Directorsince 2020
Dr Jean Pierre LaurentScientific Director2024
John SpencerCreative Director/Executive Board Member2024
Kaitlyn NeroladakisCommunications Director/Executive Board Member2024
Kate ZaccarielloTreasurersince 2022
Keith G BrazzoVice-Presidentsince 2022
Kelly BrazzoPresident/CEOsince 2020
Kristen OlsenSecretary/Treasurersince 2022

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Kelly BrazzoPresident/CEO5$45k
Dan PopeVice-President5$0
Kristen OlsenSecretary/Treasurer1$0
John SpencerCreative Director/Executive Board Member1$0
Dr Jean Pierre LaurentScientific Director1$0
Kaitlyn NeroladakisCommunications Director/Executive Board Member1$0

Colorado roster

6 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20243013918). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
John SpencerBoard Member
Kaitlyn NeroladakisCommunications Director
Kelly Brazzo
Kelly BrazzoPresident
Kristen OlsenSecretary/Treasurer
Daniel PopeVice President

About

Legal name
Cure Lgmd2i Foundation
EIN
800680447
Address
4028 Marietta Ave, Columbia, PA, 17512-8901
State
Pennsylvania
Mission
Fund research for cure of limb girdle muscular dystrophy (as filed on the Form 990)
Activity (NTEE)
P40 Human services
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Human Services
Size band
4 (IRS master file code)
Formed
2011
Principal officer
Kelly Brazzo (as named on the Form 990)
IRS ruling date
1 August 2011
Status
Code 01 (unconditional exemption)
Form 990 filings on record
1, latest 2020
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥6years on the filingsKate Zaccariello
≥6years on the filingsKeith G Brazzo
≥6years on the filingsKristen Olsen

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$361k
Total liabilities
$3k
Net assets or fund balances
$358k
Contributions and grants received
$184k
Program service revenue
$0
Grants and similar paid out
$264k
Employees
1
Volunteers
12

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$223k$416kDeficit $193k

As filed on the IRS Form 990. US dollars.

Grants paid

5 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Umass Chan Medical SchoolLgmd2i therapeutics for fkrp gene correction via prime$23k
The Speak Foundation2025 international lgmd conference$15k
University of IowaDystroglycanopathy patient and family conference$10k
LGMD Awareness Foundation10th annual lgmd awareness day sponsorship$7k
Nationwide Children's HospitalNovel gene therapy$0

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Cure Lgmd2i Foundation likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Pennsylvania Department of State, business entities (data.pa.gov xvd7-5r2c). Licence: public domain. Data last fetched 18 October 2026.
State
Pennsylvania
Entity type
Domestic Nonprofit Corporation
Status
Active
Formed
18 April 2011
Registered agent
Not stated

Officers (4)

  • Dan Pope Vice President
  • Kelly J Brazzo Governor
  • Kelly J Brazzo President
  • Kristen Olsen Secretary

City and state of officers are not held in this extract.