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Governance Register
US nonprofit · EIN 820714729 · New York, NYiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 820714729) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

KIF1Aorg Inc's network

7 people1 organisationi7 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (7). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

7 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 3 voting members of its governing body on its latest Form 990 Part VI; we list 7 in Part VII (Part VII does not always name every voting member).
NameRole as filedSinceOn the board
Luke Rosen ChairBoard Chair2019
7 yrs
Angie FullerDirector2023
3 yrs
Bobby FlayBoard Member2020
6 yrs
Hans ChristingerBoard Member2020
6 yrs
Michelle TAODirector of Strategy2022
4 yrs
Nicole BoiceBoard Member2020
6 yrs
Sally JacksonDirector2018
8 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

6 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Dominique LessardChief Science Officersince 2020
Dylan VerdenChief Science Officer2023
John SiemerTreasurersince 2019
Kathryn AtchleyPresidentsince 2019
Shannon DennisChief Patient Officer2020
Shannon ScottChief Science Officer2019

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Angie FullerChairperson, Treasurer40$0
Michelle TaoVice Chairperson, Secretary5$0
Patrick SarmiereBoard Member1$0
Tamara AgajanovBoard Member1$0
Maria BarrosBoard Member1$0
Luke RosenBoard Member1$0
Sally JacksonBoard Member1$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Kif1aorg Inc
EIN
820714729
Address
1178 Broadway 3rd Floor 3535, New York, NY, 10001-5666
State
New York
Mission
Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure. (as filed on the Form 990)
Activity (NTEE)
F01 Mental health and crisis intervention
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Mental Health & Crisis Intervention
Size band
4 (IRS master file code)
Formed
2017
Principal officer
Angie Fuller (as named on the Form 990)
IRS ruling date
1 March 2017
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsSally Jackson
≥7years on the filingsLuke Rosen
≥6years on the filingsBobby Flay
≥6years on the filingsHans Christinger

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$218k
Total liabilities
$0
Net assets or fund balances
$218k
Contributions and grants received
$292k
Program service revenue
$2k
Grants and similar paid out
$3k
Employees
1
Volunteers
10