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US nonprofit · EIN 833342162 · Otsego, MIiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 833342162) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2020.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Dyrk1A Syndrome US

Donations deductible
Revenue
$47k
year to 31 December 2025
Expenses
$173k
year to 31 December 2025
Total assets
$423k
$44k liabilities
Net assets
$379k
assets less liabilities
Directors and trustees
8
4.9y av
Staff
0
10 volunteers
Left since last filing
2
25% of the board
Voting members
8
reported in Part VI
How am I connected?

Dyrk1A Syndrome US' network

8 people1 organisationi8 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Adrianne ApodacaCompany secretary2021
5 yrs
Amy J Clugston (also filed as Amy Clugston)President2021
5 yrs
ANA DowneyDirector2021
5 yrs
Ashley AllenDirector2021
5 yrs
Braxton WebbDirector2023
3 yrs
Johna GravesDirector2023
3 yrs
Priscilla GuzmanTreasurer2021
5 yrs
Sarah GlassDirector2021
5 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Adrianne ApodacaSecretary$0
Amy J ClugstonPresident$0
Ana DowneyDirector$0
Sarah GlassDirector$0
Priscilla GuzmanTreasurer$0
Carolle O'neilDirector$0
Katie WatsonDirector$0

No pay was reported for anyone in Part VII on this return.

Colorado roster

8 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263029292). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Katie WatsonDirector
Priscilla GuzmanTreasurer
Carolle O'neilDirector
Priscilla Guzman
Amy ClugstonPresident
Ana DowneyDirector
Sarah GlassDirector
Adrianne ApodacaSecretary

About

Legal name
Dyrk1a Syndrome US
EIN
833342162
Address
1745 Lorna Lane St, Otsego, MI, 49078-8719
State
Michigan
Mission
Dyrk1a syndrome US is a non-profit 501(c)3, tax exempt organization with a main purpose of improving the quality of life for those affected by dyrk1a syndrome through support, rducation, research and collaboration (as filed on the Form 990)
Activity (NTEE)
H20 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
Formed
2019
Principal officer
Amy J Clugston (as named on the Form 990)
IRS ruling date
1 April 2019
Status
Code 01 (unconditional exemption)
Form 990 filings on record
3, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥5years on the filingsAdrianne Apodaca
≥5years on the filingsAmy J Clugston
≥5years on the filingsANA Downey
≥5years on the filingsAshley Allen

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$423k
Total liabilities
$44k
Net assets or fund balances
$379k
Contributions and grants received
$47k
Program service revenue
$0
Grants and similar paid out
$81k
Employees
0
Volunteers
10

Grants paid

1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
N-Lorem Foundation$81k