Pulmonary Fibrosis Foundation
Donations deductiblePulmonary Fibrosis Foundation's network
16 people2 organisationsi16 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (16). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
16 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 15 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Wayne Pan MD PHD MBA Chair | Chair | 2023 | 3 yrs |
| David McNinch | Director | 2018 | 8 yrs |
| Devi Kumar-Nambiar JD MBA | Director | 2023 | 3 yrs |
| Grant Ballantyne | Director | 2025 | 1 yr |
| Harold R Collard MD | Director | 2025 | 1 yr |
| Heather Kagel | Director | 2022 | 4 yrs |
| Jeff Harris | Director | 2018 | 8 yrs |
| Julie Halston | Director | 2021 | 5 yrs |
| Kenneth Fang MD | Director - Term | 2023 | 3 yrs |
| Laurie Chandler CFP | Treasurer | 2018 | 8 yrs |
| Martin Attwell | Company secretary | 2021 | 5 yrs |
| Patricia Rosa | Vice Chair | 2021 | 5 yrs |
| PJ Kamani | Director | 2021 | 5 yrs |
| Susan Jacobs RN Ms | Director | 2023 | 3 yrs |
| Terence Hales | Director | 2018 | 8 yrs |
| William T Schmidt (also filed as Bill Schmidt, William Schmidt, William Schmidt) | Director | 2018 | 8 yrs |
Officers and senior leadership
19 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Amy Wardzala | VP, Development | 2025 |
| Heather Kundert | SR Dr, Corp Rel thru 06/4/2018 | 2018 |
| Janet Bianchetta | VP, Finance | since 2022 |
| Jennifer Mefford | VP, Corporate Partnerships | since 2023 |
| Jessica Shore | VP, Research & Programs | since 2022 |
| Junelle Speller | VP, PFF Registry | since 2022 |
| Jeri Webb | Associate VP, Conf & Meetings | since 2018 |
| Katherine Bein | VP, Advocacy and Programs | since 2024 |
| Kate Gates | VP, Advocacy & Programs | 2022 |
| Kathryn Trebonsky | VP, Finance Thru 04/01/21 | 2021 |
| Kerrie Trebonsky | VP, Finance | since 2018 |
| Laura Sadler | Chief Program & Bus Dev Offcr | since 2018 |
| Mary Kiener | Senior Director, HR & Admin | 2024 |
| Pauline Bianchi | VP, Research & Programs | since 2019 |
| Rex Edwards | VP, PFF Patient Registry | since 2018 |
| Scott Staszak | President & CEO | since 2018 |
| Seth Klein | VP, Development | since 2019 |
| William T Schmidt | Director/President and CEO | since 2020 |
| Zoe Bubany | VP, Board & External Relations | since 2018 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Scott Staszak | President & CEO | 40 | $422k | $11k | |
| Franck Rahaghi | Former President & CEO | 40 | $284k | $6k | |
| Seth Klein | Chief Development Officer | 40 | $209k | $7k | |
| Jessica Shore | Sr. VP, Clinical Affairs and Quality | 40 | $202k | $7k | |
| Janet Bianchetta | Chief Financial Officer | 40 | $184k | $23k | |
| Jennifer Mefford | VP, Corporate Partnerships | 40 | $173k | $6k | |
| Katherine Bein | VP, Advocacy and Programs | 40 | $159k | $32k | |
| Zoe Bubany | VP, Board and External Relations | 40 | $142k | $22k | |
| Amy Wardzala | VP, Development | 40 | $132k | $27k | |
| Wayne Pan MD PhD MBA | Chair | 1 | $0 | ||
| Patricia Rosa | Vice Chair | 1 | $0 | ||
| Martin Attwell | Secretary | 1 | $0 | ||
| Laurie Chandler CFP | Treasurer | 1 | $0 | ||
| Grant Ballantyne | Director | 1 | $0 | ||
| Harold R Collard MD | Director | 1 | $0 | ||
| Terence Hales | Director | 1 | $0 | ||
| Julie Halston | Director | 1 | $0 | ||
| Jeff Harris | Director | 1 | $0 | ||
| Susan Jacobs RN Ms | Director | 1 | $0 | ||
| Heather Kagel | Director | 1 | $0 | ||
| Pj Kamani | Director | 1 | $0 | ||
| Devi Kumar-Nambiar JD MBA | Director | 1 | $0 | ||
| David McNinch | Director | 1 | $0 | ||
| William Schmidt | Director | 1 | $0 | ||
| Kenneth Fang MD | Director - Term | 1 | $0 |
Colorado roster
26 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263015708). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Harold Collard | Director |
| Laurie Chandler | Treasurer |
| Jennifer Mefford | VP, Corporate Partnerships |
| Seth Klein | CDO |
| Susan Jacobs | Director |
| Patricia Rosa | Vice Chair |
| Pj Kamani | Director |
| Martin Attwell | Secretary |
| Wayne Pan | Chair |
| Julie Halston | Director |
| Scott Staszak | |
| Jeff Harris | Director |
| Scott Staszak | President and CEO |
| Devi Kumar-Nambiar | Director |
| Heather Kagel | Director |
| Terence Hales | Director |
| Kenneth Fang | Director |
| William Schmidt | Director |
| Zoe Bubany | VP, Board and External Relations |
| Franck Rahaghi | Former President & CEO |
| Katherine Bein | VP, Advocacy and Programs |
| Jessica Shore | Sr. VP, Clinical Affairs and Quality |
| David McNinch | Director |
| Janet Bianchetta | CFO |
| Grant Ballantyne | Director |
| Amy Wardzala | VP, Development |
About
- Legal name
- Pulmonary Fibrosis Foundation
- EIN
- 841558631
- Address
- 223 W Jackson Blvd Ste 350, Chicago, IL, 60606-6974
- State
- Illinois
- Mission
- The pulmonary fibrosis foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life. Our ultimate goal is to find a cure for pulmonary fibrosis. (as filed on the Form 990)
- Activity (NTEE)
- G45 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 8 (IRS master file code)
- Formed
- 2000
- Principal officer
- Scott Staszak (as named on the Form 990)
- IRS ruling date
- 1 November 2000
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 8, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsDavid McNinch
≥8years on the filingsJeff Harris
≥8years on the filingsLaurie Chandler CFP
≥8years on the filingsTerence Hales
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $17.5m
- Total liabilities
- $3.8m
- Net assets or fund balances
- $13.7m
- Contributions and grants received
- $8m
- Program service revenue
- $1.6m
- Grants and similar paid out
- $620k
- Employees
- 39
- Volunteers
- 4,833
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $8.3m | $9m | Deficit $733k |
As filed on the IRS Form 990. US dollars.
Grants paid
6 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Weill Medical College of Cornell University | Associations of ct-assessed airway diameter and clinical outcomes in pulmonary fibrosis | $100k |
| Johns Hopkins University School of Medicine | Pulmonary hypertension prediction in patients with interstitial lung disease | $100k |
| Cedars-Sinai Medical Center | Regulation of her2 activation in fibroblast invasion and pulmonary fibrosis. | $100k |
| University of Kansas Medical Center Research Institute | Metabolomics of preclinical pulmonary fibrosis | $100k |
| Vanderbilt University Medical Center | Hif2 modulation of alveolar repair in pulmonary fibrosis | $100k |
| The Rector & Visitors of the University of Virginia | The role of b-1 cells and igm in pulmonary fibrosis pathogensis | $100k |