Lissencephaly Foundation Inc
Donations deductibleLissencephaly Foundation Inc's network
5 peoplei5 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (5). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
5 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 3 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Hillary McNerney | Proclamation Coordinator | 2024 | 2 yrs |
| Kara Jones | President and CEO | 2019 | 7 yrs |
| Meghan Verret | Condolences Package Artist | 2023 | 3 yrs |
| Misty Harlan | Vice President | 2019 | 7 yrs |
| Myriam Serrano | Company secretary | 2019 | 7 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Kara Jones | President and CEO | 11 | $0 | ||
| Misty Harlan | Vice President | 10 | $0 | ||
| Myriam Serrano | Secretary | 1 | $0 | ||
| Meghan Verret | Condolences Package Artist | 1 | $0 | ||
| Hillary McNerney | Proclamation Coordinator | 1 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Lissencephaly Foundation Inc
- EIN
- 841827899
- Address
- Po Box 698, Shasta Lake, CA, 96019-0698
- State
- California
- Mission
- Empowering families and educating communities to support lissencephaly families in a multitude of ways to educate new parents and communities about this rare neurological condition (as filed on the Form 990)
- Activity (NTEE)
- E01 Health care
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Health Care
- Size band
- 2 (IRS master file code)
- Formed
- 2019
- IRS ruling date
- 1 February 2020
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsKara Jones
≥7years on the filingsMisty Harlan
≥7years on the filingsMyriam Serrano
≥3years on the filingsMeghan Verret
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $17k
- Total liabilities
- $0
- Net assets or fund balances
- $17k
- Contributions and grants received
- $16k
- Program service revenue
- $0
- Employees
- 0
- Volunteers
- 5
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $16k | $18k | Deficit $2k |
As filed on the IRS Form 990. US dollars.