Kcnt1 Slack Epilepsy Foundation Inc
Donations deductibleRevenue
$1.5m
year to 31 December 2025
Expenses
$486k
year to 31 December 2025
Total assets
$2m
$0 liabilities
Net assets
$2m
assets less liabilities
Directors and trustees
6
3.9 years on average
Staff
1
employees, year to 31 December 2025
Chair observed
≥2 yrs
Owen Billman
Left since last filing
0
no seats appear to have opened
Kcnt1 Slack Epilepsy Foundation Inc's network
6 peoplei6 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (6). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
6 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 10 voting members of its governing body on its latest Form 990 Part VI; we list 6 in Part VII (Part VII does not always name every voting member).| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Owen Billman Chair | Chairman | 2022 | 4 yrs |
| Dewey McLin | Director | 2024 | 2 yrs |
| Jason J Kaufman | Director | 2022 | 4 yrs |
| Joseph Riculli | Director | 2022 | 4 yrs |
| Morrisette Royster | Director | 2022 | 4 yrs |
| Sarah Drislane | Executive Director | 2023 | 3 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Justin West | President | since 2023 |
| Margot Goodkin | Company secretary | since 2023 |
| Norman Metcalfe | Treasurer | since 2023 |
| Samantha Macmechan | Vice Chair | since 2023 |
| Sarah Drislane | Executive Director | 2022 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Sarah Drislane | Executive Director | 60 | $28k | ||
| Margot Goodkin | Director | 0.25 | $0 | ||
| Samantha MacMechan | Director | 0.25 | $0 | ||
| Owen Billman | Chairman | 2 | $0 | ||
| Dewey McLin | Director | 0.25 | $0 | ||
| Bonnie Royster | Director | 0.25 | $0 | ||
| Sean Turbeville | Director | 1 | $0 | ||
| Justin West | President | 10 | $0 | ||
| Norman Metcalfe | Treasurer | 1 | $0 | ||
| Meg Snowden | Secretary | 1 | $0 |
About
- Legal name
- KCNT1 Slack Epilepsy Foundation Inc
- EIN
- 842748218
- Address
- 32531 N Scottsdale Rd 105-530, Scottsdale, AZ, 85266-1519
- State
- Arizona
- Mission
- to accelerate the development of effective therapies and improve outcomes for individuals affected by KCNT1 related epilepsy and neurodevelopmental disorders. And advances research, supports families, and builds the collaborative infrastructure necessary to enable clinical trials (as filed on the Form 990)
- Activity (NTEE)
- G54 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 6 (IRS master file code)
- Formed
- 2019
- IRS ruling date
- 1 March 2021
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 3, latest 2024
- IRS Publication 78
- PC (contributions deductible)
- Principal officer
- Seth Greenblott (Form 990-N, tax year 2021)
Most connected
Longest observed on the filings
≥4years on the filingsOwen Billman
≥4years on the filingsJason J Kaufman
≥4years on the filingsJoseph Riculli
≥4years on the filingsMorrisette Royster
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $2m
- Total liabilities
- $0
- Net assets or fund balances
- $2m
- Contributions and grants received
- $1.5m
- Program service revenue
- $0
- Grants and similar paid out
- $2k
- Employees
- 1
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $719k | $218k | $501k |
As filed on the IRS Form 990. US dollars.