The American Porphyrias Expert Collaborative Inc
Donations deductibleRevenue
$2.3m
year to 31 December 2024
Expenses
$296k
year to 31 December 2024
Total assets
$2.2m
$0 liabilities
Net assets
$2.2m
assets less liabilities
Directors and trustees
9
5.1 years on average
Staff
0
employees, year to 31 December 2024
Left since last filing
0
no seats appear to have opened
Activity
H90
Medical research
The American Porphyrias Expert Collaborative Inc's network
9 people2 organisationsi9 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (9). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
9 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Brendan McGuire | Director | 2021 | 5 yrs |
| Bruce Wang MD | Director | 2022 | 4 yrs |
| Herbert Bonkovsky | Director | 2022 | 4 yrs |
| John Phillips | Vice President | 2021 | 5 yrs |
| Karl Anderson | Director | 2021 | 5 yrs |
| Kristen Wheeden | Secretary-Treas | 2021 | 5 yrs |
| Manisha Baldwani | Director | 2022 | 4 yrs |
| Richard Bissell | Director | 2021 | 5 yrs |
| Robert Desnick | President | 2021 | 5 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Robert Desnick | President | 3 | $0 | ||
| John Phillips | Vice President | 1 | $0 | ||
| Kristen Wheeden | Secretary-Treas | 5 | $0 | ||
| Manisha Baldwani | Director | 1 | $0 | ||
| Richard Bissell | Director | 1 | $0 | ||
| Herbert Bonkovsky | Director | 1 | $0 | ||
| Brendan McGuire | Director | 1 | $0 | ||
| Karl Anderson | Director | 1 | $0 | ||
| Bruce Wang MD | Director | 1 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- The American Porphyrias Expert Collaborative Inc
- EIN
- 844857909
- Address
- 4800 Hampden Ln Ste 200, Bethesda, MD, 20814-2934
- State
- Maryland
- Mission
- To promote and carry out research, and promote educational activities, regarding porphyrias and heme biosynthesis through development of best practices, research support, and education. (as filed on the Form 990)
- Activity (NTEE)
- H90 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 6 (IRS master file code)
- Formed
- 2020
- IRS ruling date
- 1 October 2020
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 3, latest 2023
- IRS Publication 78
- PC (contributions deductible)
- Principal officer
- Robert Desnick (Form 990-N, tax year 2020)
Most connected
Longest observed on the filings
≥5years on the filingsBrendan McGuire
≥5years on the filingsJohn Phillips
≥5years on the filingsKarl Anderson
≥5years on the filingsKristen Wheeden
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $2.2m
- Total liabilities
- $0
- Net assets or fund balances
- $2.2m
- Contributions and grants received
- $2.3m
- Program service revenue
- $0
- Grants and similar paid out
- $275k
- Employees
- 0
Grants paid
4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Ucsf | Support heme biosynthesis research | $150k |
| Mass General Hospital | Support heme biosynthesis research | $50k |
| Stanford | Support heme biosynthesis research | $50k |
| Mount Sinai School of Medicin | Support heme biosynthesis research | $25k |