Cacna1A Foundation Inc
Donations deductibleCacna1A Foundation Inc's network
8 peoplei8 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Allison Buchner | Director | 2020 | 6 yrs |
| Amy Junge | Company secretary | 2022 | 4 yrs |
| Deborah Ondrasik MD | Director | 2023 | 3 yrs |
| Hala Mirza | Director | 2022 | 4 yrs |
| Lisa Manaster | President | 2020 | 6 yrs |
| Michael Strupp | Director | 2024 | 2 yrs |
| Sunitha Malepati | Vice President & Treasurer | 2020 | 6 yrs |
| Sarah Greathouse | Director | 2023 | 3 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Shira Johnson | Executive Director | 40 | $42k | ||
| Lisa Manaster | President | 40 | $0 | ||
| Sunitha Malepati | Vice President & Treasurer | 40 | $0 | ||
| Allison Buchner | Director | 5 | $0 | ||
| Amy Junge | Secretary | 10 | $0 | ||
| Hala Mirza | Director | 5 | $0 | ||
| Sarah Greathouse | Director | 5 | $0 | ||
| Deborah Ondrasik MD | Director | 5 | $0 | ||
| Michael Strupp | Director | 5 | $0 | ||
| Casey Dawley | Director | 5 | $0 | ||
| Brandon Farley PhD | Director | 5 | $0 |
Colorado roster
13 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263029770). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Sunitha Malepati | |
| Deborah Ondrasik | Director |
| Allison Bucher | Director |
| Amy Junge | Secretary |
| Hala Mirza | Director |
| Sunitha Malepati | Vice President & Treasurer |
| Brandon Farley | Director |
| Casey Dawley | Director |
| Michael Strupp | Director |
| Shira Johnson | Executive Director |
| Kyle Macleod | Director |
| Lisa Manaster | President |
| Sarah Greathouse | Director |
About
- Legal name
- Cacna1a Foundation Inc
- EIN
- 844985747
- Address
- 31 Point Rd, Norwalk, CT, 06854-5024
- State
- Connecticut
- Mission
- To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission) (as filed on the Form 990)
- Activity (NTEE)
- G20 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 6 (IRS master file code)
- Formed
- 2020
- Principal officer
- Sunitha Malepati (as named on the Form 990)
- IRS ruling date
- 1 May 2020
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥6years on the filingsAllison Buchner
≥6years on the filingsLisa Manaster
≥6years on the filingsSunitha Malepati
≥4years on the filingsAmy Junge
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $1m
- Total liabilities
- $78k
- Net assets or fund balances
- $930k
- Contributions and grants received
- $597k
- Program service revenue
- $89k
- Grants and similar paid out
- $98k
- Employees
- 1
- Volunteers
- 35
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $466k | $540k | Deficit $75k |
As filed on the IRS Form 990. US dollars.
Grants paid
4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Dexorgen Inc | $56k | |
| RNAspire LLC | $30k | |
| CombinedBrain | $24k | |
| ProSci LLC | $7k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Cacna1a Foundation, Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Connecticut Secretary of the State, business registry and officers (data.ct.gov n7gp-d28j and ka36-64k6). Licence not stated. Data last fetched 18 October 2026.
- State
- Connecticut
- Entity type
- Non-Stock
- Status
- Active
- Formed
- 12 March 2020
- Registered agent
- Lisa Manaster (city and state not held)
Officers (3)
- Amy Junge Officer
- Lisa Manaster Officer
- Sunitha Malepati Officer
City and state of officers are not held in this extract.