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Governance Register
US nonprofit · EIN 852663072 · Rockport, MEiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 852663072) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Principal officer IRS Form 990-N (e-Postcard) - principal officer named for tax year 2020.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

National Task Group on Intellectual Disabilities and Dementia Practic's network

17 peoplei17 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (17). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

17 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 17 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Adel Herge OTDBoard Member2022
4 yrs
Christina Marsack-Topolewski PhDBoard Member2022
4 yrs
Colleen Hatcher MEdBoard Member2022
4 yrs
Dawna Torres Moghal PhDBoard Member2023
3 yrs
Helen E Stepowany MsTreasurer2022
4 yrs
Kathleen Bishop PhDVice President2022
4 yrs
Kathryn Service FNPCompany secretary2022
4 yrs
Lucille Esralew PhDBoard Member2022
4 yrs
Marianne BarberaBoard Member2022
4 yrs
Mary Milnamow MSSBoard Member2023
3 yrs
Matthew Janicki PhDCo-President2022
4 yrs
Nancy Jokinen PhDBoard Member2022
4 yrs
Nancy Murray MsBoard Member2022
4 yrs
Philip McCallion PhDBoard Member2022
4 yrs
Rick Rader MDBoard Member2022
4 yrs
Seth Keller MDCo-President2022
4 yrs
Teresa Moro PhDBoard Member2023
3 yrs
Under 5 years5 to 6 years6 years or moreShow all 17 →

Officers and senior leadership

1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Kathryn Pears MppmDirector of Operations2023

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Kathryn Pears MPPMChief Operations Officer40$95k
Kathleen Bishop PhDBoard Member1$33k
Kathryn Service FNPSecretary1$2k
Nancy Jokinen PhDVice President1$500
Nancy Murray MSBoard Member1$450
Mary Milnamow MSSBoard Member1$300
Teresa Morrow PhDBoard Member1$300
Seth Keller MDCo-President1$150
Matthew Janicki PhDCo-President1$0
Diane RubensteinTreasurer1$0
Lucille Esralew PhDBoard Member1$0
Colleen Hatcher MEdBoard Member1$0
Christina Marsack-Topolewski PhDBoard Member1$0
Philip McCallion PhDBoard Member1$0
Dawna Torres Mughal PhDBoard Member1$0
Rick Rader MDBoard Member1$0

About

Legal name
National Task Group on Intellectual Disabilities and Dementia Practic
EIN
852663072
Address
Po Box 862, Rockport, ME, 04856-0862
State
Maine
Mission
The NTG's overall mission is to advocate for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and dementias. (as filed on the Form 990)
Activity (NTEE)
H83 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
4 (IRS master file code)
Formed
2010
Principal officer
Matthew Janicki (as named on the Form 990)
IRS ruling date
1 June 2021
Status
Code 01 (unconditional exemption)
Form 990 filings on record
2, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥4years on the filingsAdel Herge OTD
≥4years on the filingsChristina Marsack-Topolewski PhD
≥4years on the filingsColleen Hatcher MEd
≥4years on the filingsHelen E Stepowany Ms

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$275k
Total liabilities
$30k
Net assets or fund balances
$246k
Contributions and grants received
$88k
Program service revenue
$256k
Employees
3
Volunteers
15