Cure Kcnh1 Foundation
Donations deductibleRevenue
$317k
year to 31 December 2025
Expenses
$263k
year to 31 December 2025
Total assets
$273k
$0 liabilities
Net assets
$273k
assets less liabilities
Directors and trustees
6
3.4 years on average
Staff
0
15 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
5
named in Part VII
Cure Kcnh1 Foundation's network
6 people2 organisationsi6 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (6). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
6 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Amy Finnigan | Director | 2023 | 3 yrs |
| James Pearson | Company secretary | 2023 | 3 yrs |
| Joshua Yelsey | Treasurer | 2023 | 3 yrs |
| Kevin Witt | Director | 2023 | 3 yrs |
| Michaelle Jinnette | President | 2023 | 3 yrs |
| Noreen Haider | Director | 2023 | 3 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Amy Finnigan | Director | 2022 |
| James Pearson | Company secretary | 2022 |
| Joshua Yelsey | Treasurer | 2022 |
| Kevin Witt | Director | 2022 |
| Michaelle Jinnette | President | 2022 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michaelle Jinnette | President | 50 | $0 | ||
| Kevin Witt | Treasurer | 15 | $0 | ||
| Noreen Haider | Director | 2 | $0 | ||
| Meg Stacker King | Director | 2 | $0 | ||
| Josh Yelsey | Director | 2 | $0 | ||
| James Pearson | Secretary | 2 | $0 | ||
| Amy Finnigan | Director | 2 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Cure KCNH1 Foundation
- EIN
- 872041980
- Address
- 1928 Wandering Rd, Encinitas, CA, 92024-5621
- State
- California
- Mission
- Our mission is to urgently improve the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the KCNH1 patient and professional community raising awareness about KCNH1-related disorders and advocating for the needs of families affected by rare diseases. (as filed on the Form 990)
- Activity (NTEE)
- H01 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 4 (IRS master file code)
- Formed
- 2021
- Principal officer
- Michaelle Jinnette (as named on the Form 990)
- IRS ruling date
- 1 December 2021
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 1, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥3years on the filingsAmy Finnigan
≥3years on the filingsJames Pearson
≥3years on the filingsJoshua Yelsey
≥3years on the filingsKevin Witt
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $273k
- Total liabilities
- $0
- Net assets or fund balances
- $273k
- Contributions and grants received
- $309k
- Program service revenue
- $0
- Grants and similar paid out
- $168k
- Employees
- 0
- Volunteers
- 15
Grants paid
4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Northwestern University | Funded the launch of a CRISPR gene-editing project a true cure for KCNH1 disorders. | $100k |
| Northwestern University | Established a biorepository to collect patient-derived bio samples to fund the development of cell lines that will be used to develop diseas | $30k |
| Northwestern University | Funded the ongoing development of antisense oligonucleotides RNA therapeutics for KCNH1 this treatment is showing very promising results in | $20k |
| N-Lorem Foundation | Funded the final stages of preclinical development of an allele selective antisense oligonucleotide RNA therapeutic for KCNH1. | $18k |