Undiagnosed Diseases Network Foundation
Donations deductibleRevenue
$120k
year to 31 December 2025
Expenses
$1.1m
year to 31 December 2025
Total assets
$411k
$9k liabilities
Net assets
$401k
assets less liabilities
Directors and trustees
15
3.5 years on average
Chair observed
≥3 yrs
Meghan Halley PhD
Left since last filing
0
no seats appear to have opened
Officers and senior staff
2
named in Part VII
Undiagnosed Diseases Network Foundation's network
15 people1 organisationi15 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (15). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
15 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 15 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Meghan Halley PhD Chair (also filed as Meghan Halley) | Board Chairman | 2021 | 5 yrs |
| Anne Pariser | Board Member | 2023 | 3 yrs |
| Effie Parks | Board Member | 2023 | 3 yrs |
| F Sessions Cole | Company secretary | 2023 | 3 yrs |
| Gerald Sweeney | Board Member | 2023 | 3 yrs |
| Jessica Swanson | Borad Member | 2024 | 2 yrs |
| Kelly Cerventes | Board Member | 2024 | 2 yrs |
| Liliana Fernandez | Board Member | 2023 | 3 yrs |
| Parvathy Krishnan | Board Member | 2023 | 3 yrs |
| Sika Dunyoh | Board Member | 2023 | 3 yrs |
| Stephan Zuchner | Board Member | 2023 | 3 yrs |
| Stephanie Tomlinson | Board Member | 2024 | 2 yrs |
| Tania Simoncelli | Board Member | 2023 | 3 yrs |
| Tom Kelley | Board Member | 2023 | 3 yrs |
| Troy Evans | Treasurer | 2021 | 5 yrs |
Officers and senior leadership
2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Amy Gray | CEO | since 2023 |
| Helene Cederroth | Vice Chairman | 2023 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michele Herndon | Highest Compensated Employee | 40 | $142k | ||
| Danielle Carnival | CEO | 40 | $114k | ||
| Meghan Halley | Emeritus Board Member | 2 | $0 | ||
| F Sessions Cole | Vice Chair/Chair | 10 | $0 | ||
| Troy Evans | Treasurer | 5 | $0 | ||
| Effie Parks | Board Member | 2 | $0 | ||
| Gerald Sweeney | Board Member/Vice Chair | 2 | $0 | ||
| Liliana Fernandez | Board Member | 2 | $0 | ||
| Parvathy Krishnan | Board Member | 2 | $0 | ||
| Sika Dunyoh | Chair/Board Member | 2 | $0 | ||
| Stephan Zuchner | Board Member | 2 | $0 | ||
| Tom Kelley | Board Member | 2 | $0 | ||
| Kelly Cerventes | Secretary | 5 | $0 | ||
| Tania Simoncelli | Board Member | 2 | $0 | ||
| Max Bronstein | Board Member | 2 | $0 |
About
- Legal name
- Undiagnosed Diseases Network Foundation
- EIN
- 873474254
- Address
- 1012 14th St Nw Ste 500, Washington, DC, 20005-3406
- State
- District of Columbia
- Activity (NTEE)
- G12 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 4 (IRS master file code)
- IRS ruling date
- 1 March 2023
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 3, latest 2024
- IRS Publication 78
- PC (contributions deductible)
- Principal officer
- Amy Gray (Form 990-N, tax year 2022)
Most connected
Longest observed on the filings
≥5years on the filingsMeghan Halley PhD
≥5years on the filingsTroy Evans
≥3years on the filingsAnne Pariser
≥3years on the filingsEffie Parks
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $411k
- Total liabilities
- $9k
- Net assets or fund balances
- $401k
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $329k | $1.4m | Deficit $1.1m |
As filed on the IRS Form 990. US dollars.
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Undiagnosed Diseases Network Foundation likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: DC Department of Licensing and Consumer Protection (DLCP), corporate registrations (opendata.dc.gov). Licence: CC BY 4.0. Attribution: DC DLCP. Data last fetched 18 October 2026.
- State
- District of Columbia
- Entity type
- Domestic Nonprofit Corporation
- Status
- Active - In Good Standing
- Formed
- 5 November 2021
- Registered agent
- Registered Agents Inc (city and state not held)