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Governance Register
US nonprofit · EIN 954733266 · Sherman Oaks, CAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 954733266) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

The Hide and Seek Foundation's network

4 people4 organisationsi4 people and 4 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (4). Violet dotted lines (4) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

4 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 4 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Debra PellDirector2018
8 yrs
Jack BendheimDirector2018
8 yrs
Jonathan JacobyExecutive Director2018
8 yrs
Susan Jacoby SternDirector2018
8 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Jonathan JacobyExecutive Director10$0
Jack BendheimDirector2$0
Susan Jacoby SternDirector2$0
Debra PellDirector2$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
The Hide and Seek Foundation
EIN
954733266
Address
4561 Nagle Ave, Sherman Oaks, CA, 91423-3225
State
California
Mission
To find a cure for the sixty-four strains of lysosomal disease. (as filed on the Form 990)
Activity (NTEE)
T99 Philanthropy, voluntary services and grantmaking
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Philanthropy, Voluntarism & Grantmaking Foundations
Size band
5 (IRS master file code)
Formed
2001
Principal officer
Jonathan Jacoby (as named on the Form 990)
IRS ruling date
1 December 1999
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsDebra Pell
≥8years on the filingsJack Bendheim
≥8years on the filingsJonathan Jacoby
≥8years on the filingsSusan Jacoby Stern

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$731k
Total liabilities
$14k
Net assets or fund balances
$717k
Contributions and grants received
$201k
Program service revenue
$0
Grants and similar paid out
$56k
Employees
0

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$210k$147k$63k

As filed on the IRS Form 990. US dollars.

Grants paid

4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
University of Il at ChicagoTo find a cure for the sixty-four strains of lysosomal disease.$21k
Regents of the University of MichiganTo find a cure for the sixty-four strains of lysosomal disease.$13k
The State University of Iowa FoundationTo find a cure for the sixty-four strains of lysosomal disease.$13k
Bloomsbury Genetic Therapies Limited Adrien LemoineTo find a cure for the sixty-four strains of lysosomal disease.$7k