Registered charity · Derby
Myaware
Myaware is a registered charity (number 1046443) based in Derby, governed by 9 trustees. Latest income £449k (2025). Source: Charity Commission register, updated 18th October 2026.
- 9 trustees
- Income £449k (2025)
The people who lead this organisation are listed below. Create a free account to save it, get alerts and check how you are connected.
Official record Charity Commission · updated 18th October 2026 · Sources · Free, no card or password
Network
The large node is Myaware. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.myaware.org (opens in a new tab)
- Linked company
- Myaware
- Registered
- 1995
Income and spending
- YearIncomeSpending
- 2025£449k£1.1m
- 2024£1.2m£1.1m
- 2023£329k£717k
Earlier years
- 2022£707k£1.0m
- 2021£993k£1.1m
Income trend, 2021 to 2025.
Charitable objects
TO PROMOTE ANY CHARITABLE PURPOSES FOR THE BENEFIT OF THOSE PERSONS WHO SUFFER FROM MYASTHENIA GRAVIS, AND IN PARTICULAR BUT WITHOUT LIMITATION TO RELIEVE SICKNESS, HARDSHIP AND DISTRESS AND PROVIDE COMFORT AND SUPPORT TO PEOPLE SUFFERING FROM MYASTHENIA GRAVIS AND TO PROMOTE AND ENCOURAGE EDUCATION AND RESEARCH INTO MYASTHENIA GRAVIS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.
Grants received
56 grants · £666,236 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £480,371 (49 grants)
- Department for Digital, Culture, Media & Sport · £106,773
- BBC Children in Need · £71,514
- Point North · £2,678
- Masonic Charitable Foundation · £2,250 (2 grants)
Most recent
- Department for Digital, Culture, Media & Sport
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Andrew John Robinson
- Claire Wen since 2024
- DR Bethan Lang since 2013
- Dr Channa Hewamadduma since 2024
- Dr Katherine Dodd since 2025
- Dr Saiju Jacob since 2018
- Jon Rio since 2016
- Rashmi Rungta since 2020
- Sara Jones since 2024
Trustees past 6 years
- DR Bethan Lang since 2013
- Dr Saiju Jacob since 2018
- Jon Rio since 2016
First-time vs portfolio trustees
First-time (7)
- Andrew John Robinson
- Claire Wen since 2024
- DR Bethan Lang since 2013
- Dr Katherine Dodd since 2025
- Dr Saiju Jacob since 2018
- Jon Rio since 2016
- Sara Jones since 2024
Portfolio (2)
- Dr Channa Hewamadduma since 2024
- Rashmi Rungta since 2020
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1046443
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 27/03/1995AS AMENDED BY SPECIAL RESOLUTION(S) DATED 27/09/2003NOW ARTICLES ADOPTED BY SPECIAL RESOLUTION DATED 24/11/2012AS AMENDED BY SPECIAL RESOLUTION(S) DATED 09/11/2015AS REGISTERED AT COMPANIES HOUSE ON 20/12/2015AS AMENDED BY SPECIAL RESOLUTION(S) DATED 06 JUN 2017 as amended on 29 Mar 2018
- Companies House
- Company number 03038358 · Active
- Contact on the register
- 01332290219 · info@myaware.org
- Edition
- Register edition compiled 18th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data