Spinal Muscular Atrophy UK

Registered charity 1106815 CIO Registered since 2004

Operates: Throughout England And Wales, Scotland, Northern Ireland

Connected trustee network

The connection graph needs a free account.

This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.

Find a path from this charity →

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

3.5y median 3y

average tenure

longest tenure

trustees past 6 years

4.1y

average years in governance

12 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 14The Advancement Of Health Or Saving Of Lives 14General Charitable Purposes 1

Commercial experience

Health and social care 2Education 1Professional services 1

Boards that share trustees

Myaware 1 shared trustee
The Lake District Calvert Trust 1 shared trustee

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Related organisations

The Lake District Calvert Trust 1 shared trustee
Myaware 1 shared trustee
Take A Break Warwickshire Limited Similar size; both Disability
Credu Supporting Young and Adult Carers Limited Similar size; both Disability
The Quest School Similar size; both Disability
Koala North West Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.smauk.org.uk
Email	office@smauk.org.uk
Phone	01789267520
Address	The Mansley Business Centre, Stratford Enterprise Park, Timothy's Bridge Road, Stratford-upon-Avon, CV37 9NQ

Finances

£1,623,545 latest income

Year	Income	Spending
2021	£724,691	£575,342
2022	£839,420	£715,466
2023	£924,673	£857,523
2024	£1,263,853	£937,860
2025	£1,623,545	£1,359,898

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With DisabilitiesOther Defined Groups

How

Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1. THE RELIEF OF PEOPLE LIVING WITH SPINAL MUSCULAR ATROPHY AND RELATED MEDICAL CONDITIONS AND TO RAISE THE PUBLIC'S AWARENESS OF SUCH CONDITIONS.2. THE RELIEF OF PERSONS WHO ARE IN NEED AFTER EXPERIENCING A BEREAVEMENT OR LOSS DUE TO SPINAL MUSCULAR ATROPHY.3. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY.

Governing document: CIO - FOUNDATION CONVERSIONDATED 20 SEP 2022

Trustees (14)

14trustees

51median age

0aged 70+

Dr Gordon Harvey Chair since 2025
Alistair Mark Emslie Smith since 2020
Ben Hugh Williams since 2023
Daniel Hardy William Worrall since 2024
Dr Anne Marie Childs since 2020
Dr Channa Hewamaddumaage 51 since 2025
Dr Hassan Sobati since 2024
Jennie Elizabeth Sheehan Sheehan since 2023
Karin Yvette Edwardsage 56 since 2020
Lauren Elizabeth Jane West since 2020
Maryann Madayag Aspinall since 2023
Robin Jackson since 2025
Srinivas Madipalliage 40 since 2020
Tracey Jane Bailey Burnley since 2023

Connected charities (2)

The Lake District Calvert Trust 1 shared trustee
Myaware 1 shared trustee

For recruiters

Tools for approaching charities and finding candidates. In development - register to get early access.

Report an error in this record - let us know.