The Governance RegisterEdition 2026 · Compiled 30th August 2026

Spinal Muscular Atrophy UK

Registered charity 1106815 CIO Registered since 2004

Operates: Throughout England And Wales, Scotland, Northern Ireland

Connected trustee network

The connection graph needs a free account.

This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.

Sign in, free

Find a path from this charity →

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3.3y median 3y
average tenure
6y
longest tenure
4
trustees past 6 years
5.1y
average years in governance

First-time vs portfolio trustees

First-time (11)

Portfolio (2)

3
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 13The Advancement Of Health Or Saving Of Lives 13General Charitable Purposes 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 2Education 1Other services 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£1.6m latest income · income exceeded spending in 2024 and 2025
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

5.2 months of spending held in free reserves · median for charities its size: 3.9 months · was 9.8 in 2021

16 from 12 in 2021
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.smauk.org.uk
Emailoffice@smauk.org.uk
Phone01789267520
AddressThe Mansley Business Centre, Stratford Enterprise Park, Timothy's Bridge Road, Stratford-upon-Avon, CV37 9NQ

Finances

£1,623,545 latest income

YearIncomeSpending
2021£724,691£575,342
2022£839,420£715,466
2023£924,673£857,523
2024£1,263,853£937,860
2025£1,623,545£1,359,898

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With DisabilitiesOther Defined Groups

How

Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1. THE RELIEF OF PEOPLE LIVING WITH SPINAL MUSCULAR ATROPHY AND RELATED MEDICAL CONDITIONS AND TO RAISE THE PUBLIC'S AWARENESS OF SUCH CONDITIONS.2. THE RELIEF OF PERSONS WHO ARE IN NEED AFTER EXPERIENCING A BEREAVEMENT OR LOSS DUE TO SPINAL MUSCULAR ATROPHY.3. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY.

Governing document: CIO - FOUNDATION CONVERSIONDATED 20 SEP 2022

Trustees (13)

13trustees
51median age
0aged 70+

Connected charities (2)

For recruiters

Tools for approaching charities and finding candidates - free with an account.

Create your free account ->

Report an error in this record - let us know.