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Registered charity (CIO) · Stratford-upon-Avon

Spinal Muscular Atrophy UK

Spinal Muscular Atrophy UK is a registered charity (number 1106815) based in Stratford-upon-Avon, governed by 13 trustees and chaired by Dr Gordon Harvey since 2025. Latest income £1.6m (2025). Source: Charity Commission register, updated 25th October 2026.

Also known as Spinal Muscular Atrophy UK the Jennifer Trust (Charity Commission)

3.1 The relief and support of people living with Spinal Muscular Atrophy and related medical conditions (including their family members and dependants), and the advancement of public awareness of those conditions, including but not limited to...

  • 13 trustees
  • Income £1.6m (2025)
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Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password

Network

The large node is Spinal Muscular Atrophy UK. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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People on this board also govern

Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.smauk.org.uk (opens in a new tab)
Registered
2004

Income and spending

  • YearIncomeSpending
  • 2025£1.6m£1.4m
  • 2024£1.3m£938k
  • 2023£925k£858k
Earlier years
  • 2022£839k£715k
  • 2021£725k£575k

Income trend, 2021 to 2025.

Charitable objects

3.1 The relief and support of people living with Spinal Muscular Atrophy and related medical conditions (including their family members and dependants), and the advancement of public awareness of those conditions, including but not limited to carrying out advocacy to authorities responsible for regulating access to treatment, care, and services.3.2 The relief of persons in need who have experienced bereavement or loss arising from Spinal Muscular Atrophy.3.3 The promotion and support of research into the causes and treatment of Spinal Muscular Atrophy and related medical conditions.

Grants received

22 grants · £1,825,238 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3.3y median 3y
average tenure
6y
longest tenure
4
trustees past 6 years
5.2y
average years in governance

First-time vs portfolio trustees

First-time (11)

Portfolio (2)

3
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 13The Advancement Of Health Or Saving Of Lives 13General Charitable Purposes 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 2Education 1Other services 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£1.6m latest income · income exceeded spending in 2024 and 2025
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

5.2 months of spending held in free reserves · median for charities its size: 3.9 months · was 9.8 in 2021

16 from 12 in 2021
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1106815
Status
Registered
Governing document
CIO - FOUNDATION CONVERSIONDATED 20 SEP 2022 as amended on 16 Sept 2026
Contact on the register
01789267520 · office@smauk.org.uk
Edition
Register edition compiled 25th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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