Primary Ciliary Dyskinesia Support UK
Registered charity 1049931 Registered since 1995
Operates: Throughout England And Wales, Scotland
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Sector coverage
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
- Mostly recent joiners - limited long-term continuity
Boards that share trustees
- Primary Ciliary Dyskinesia Support UK 1 shared trustee
Related organisations
- Primary Ciliary Dyskinesia Support UK 1 shared trustee
- The Lyons Charitable Trust Similar size; both Health
- Lancaster Footcare Service Similar size; both Health
- Samaritans of Salisbury and District Similar size; both Health
- ART Therapy Yorkshire Similar size; both Health
- Samaritans of Stoke-on-Trent and Newcastle Similar size; both Health
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.pcdsupport.org.uk |
| chair@pcdsupport.org.uk | |
| Phone | 000000000000 |
| Address | 3 Laggan Road, MAIDENHEAD, Berkshire, SL6 7JY |
Finances
£66,445 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £33,209 | £9,759 |
| 2021 | £54,967 | £16,949 |
| 2022 | £36,913 | £25,308 |
| 2023 | £20,511 | £51,272 |
| 2024 | £66,445 | £41,020 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
People With DisabilitiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource BodyCharitable objects
1) THE RELIEF OF PERSONS AFFECTED BY PRIMARY CILIARY DYSKINESIA AND ALLIED CONDITIONS. 2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH CONDITIONS PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.
Governing document: CONSTITUTION ADOPTED 7 MAY 1995, AS AMENDED 31 AUGUST 2001AS AMENDED ON 23 JAN 2021
Trustees (4)
- Katie Dexter Chair since 2021
- Abdullah Ihsan since 2020
- Gary Tipping
- Myra Tipping
Connected charities (1)
- Primary Ciliary Dyskinesia Support UK 1 shared trustee
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