Primary Ciliary Dyskinesia Support UK
Registered charity 1207340 CIO Registered since 2024
Operates: Throughout England, Scotland, Northern Ireland
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Sector coverage
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
- Mostly recent joiners - limited long-term continuity
Boards that share trustees
- Primary Ciliary Dyskinesia Support UK 1 shared trustee
Related organisations
- Primary Ciliary Dyskinesia Support UK 1 shared trustee
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | https://pcdsupport.org.uk/ |
| chair@pcdsupport.org.uk | |
| Phone | 0000000000 |
| Address | 3 Laggan Road, MAIDENHEAD, Berkshire, SL6 7JY |
Finances
£0 latest income
| Year | Income | Spending |
|---|---|---|
| 2024 | £0 | £0 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
People With DisabilitiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource BodyCharitable objects
FOR THE PUBLIC BENEFIT TO PRESERVE AND PROTECT THE HEALTH AND TO RELIEVE THE NEEDS OF PATIENTS, WHO HAVE OR ARE SUSPECTED OF HAVING PRIMARY CILIARY DYSKINESIA (PCD) AND THEIR CARERS IN THE UNITED KINGDOM [INCLUDING SCOTLAND AND NORTHERN IRELAND] IN PARTICULAR BUT NOT EXCLUSIVELY BY:- RAISING AWARENESS OF PCD BY PROVIDING INFORMATION TO THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. - ENCOURAGING THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF PCD, PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED
Governing document: CIO - FOUNDATION Registered 06 Mar 2024
Trustees (5)
- Alexander Simon Polak Chair since 2026
- Abdullah Ihsan since 2024
- Gerald Paul Rowe-Ham since 2024
- Katie Vance since 2024
- Natasha Mary Bellwood since 2024
Connected charities (1)
- Primary Ciliary Dyskinesia Support UK 1 shared trustee
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