Rare Chromosome Disorder Support Group
Registered charity 1110661 Registered since 2005
Operates: Throughout England And Wales
Connected trustee network
The connection graph needs a free account.
This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.
Sign in, freeBoard DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
- Radiomarathon (for Children With Special Needs) LTD Similar size; both Disability
- National Association of Independent Schools and NON-Maintained Special Schools Similar size; both Disability
- YAD Voezer DAY Centre Limited Similar size; both Disability
- POA Welfare Fund Similar size; both Disability
- IAH Charity Company Limited Similar size; both Disability
- Firefly Cancer Awareness and Support Limited Similar size; both Disability
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.rarechromo.org |
| info@rarechromo.org | |
| Phone | 01883330766 |
| Address | F4 The Stables, Station Road West, Oxted, Oxted, Surrey, RH8 9EE |
Finances
£467,192 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £357,247 | £299,685 |
| 2022 | £304,805 | £343,810 |
| 2023 | £289,143 | £382,563 |
| 2024 | £396,667 | £369,642 |
| 2025 | £467,192 | £402,200 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
People With DisabilitiesOther Defined GroupsHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource BodyCharitable objects
3.1 TO ASSIST AND RELIEVE SUFFERERS FROM RARE CHROMOSOME DISORDERS3.2 TO EDUCATE THE PUBLIC REGARDING RARE CHROMOSOME DISORDERS3.3 TO RELIEVE THE PARENTS AND CARERS OF PERSONS SUFFERING FROM RARE CHROMOSOME DISORDERS WHO ARE IN CONDITIONS OF NEED HARDSHIP OR DISTRESS
Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 23 MAY 2005
Trustees (8)
- Helen Elizabeth Campbellage 58 Chair since 2014
- Ben Stern since 2014
- Cecely Hughage 42 since 2024
- Edna Margaret Knight MBEage 83
- Fiona Catherine Fulton DE Zoeteage 78 since 2013
- James Edward Lucasage 60 since 2025
- Sophie Priscilla Saintyage 57
- Shwetha Ramachandrappaage 44 since 2019
Linked company (Companies House)
Rare Chromosome Disorder Support Group · 05460413 · Active
PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 23/05/2005
2 governing document(s) held from Companies House.
Connected charities (0)
No charities share a trustee (from current data).
For recruiters
Tools for approaching charities and finding candidates. In development - register to get early access.
Report an error in this record - let us know.
Related record