Registered charity · Surrey
Rare Chromosome Disorder Support Group
- 8 trustees
- Income £467k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
The large node is Rare Chromosome Disorder Support Group. Red nodes are organisations, white nodes are people. Sign in free to explore further.
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales
- Website
- www.rarechromo.org (opens in a new tab)
- Linked company
- Rare Chromosome Disorder Support Group
- Registered
- 2005
Income and spending
- YearIncomeSpending
- 2025£467k£402k
- 2024£397k£370k
- 2023£289k£383k
Earlier years
- 2022£305k£344k
- 2021£357k£300k
Income trend, 2021 to 2025.
Charitable objects
3.1 TO ASSIST AND RELIEVE SUFFERERS FROM RARE CHROMOSOME DISORDERS3.2 TO EDUCATE THE PUBLIC REGARDING RARE CHROMOSOME DISORDERS3.3 TO RELIEVE THE PARENTS AND CARERS OF PERSONS SUFFERING FROM RARE CHROMOSOME DISORDERS WHO ARE IN CONDITIONS OF NEED HARDSHIP OR DISTRESS
Grants received
14 grants · £274,236 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £239,436 (10 grants)
- Postcode Society Trust · £25,000
- The Grocers' Charity · £5,000
- Community Foundation for Surrey · £3,000
- London Catalyst · £1,800
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
8 trustees on the board
- Helen Elizabeth Campbell Chair since 2014
- Ben Stern since 2014
- Cecely Hugh since 2024
- Edna Margaret Knight MBE
- Fiona Catherine Fulton DE Zoete since 2013
- James Edward Lucas since 2025
- Sophie Priscilla Sainty
- Shwetha Ramachandrappa since 2019
Trustees past 6 years
- Helen Elizabeth Campbell Chair since 2014
- Ben Stern since 2014
- Fiona Catherine Fulton DE Zoete since 2013
- Shwetha Ramachandrappa since 2019
First-time vs portfolio trustees
First-time (8)
- Helen Elizabeth Campbell Chair since 2014
- Ben Stern since 2014
- Cecely Hugh since 2024
- Edna Margaret Knight MBE
- Fiona Catherine Fulton DE Zoete since 2013
- James Edward Lucas since 2025
- Sophie Priscilla Sainty
- Shwetha Ramachandrappa since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1110661
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 23 MAY 2005
- Companies House
- Company number 05460413 · Active
- Contact on the register
- 01883330766 · info@rarechromo.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data