Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland

Company

Rare Chromosome Disorder Support Group

How am I connected?
More
View network map Report an issue

Official record Companies House · updated 27th September 2026 · Sources

Network

The large node is Rare Chromosome Disorder Support Group. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Previous officers 9

  1. James Francis Toop 2017-2024 Director View profile
  2. Isobel Hindle 2013-2024 Director View profile
  3. Sally Anne Cohen 2010-2018 Director View profile
  4. Michael William Toothill 2010-2010 Director View profile
  5. David Charles Williams 2008-2010 Director View profile
  6. Michael Patterson 2005-2006 Director View profile
  7. Gillian Margaret Manvell 2005-2023 Director View profile
  8. Craig Robert Mitchell 2010-2024 Secretary View profile
  9. Eleanor Harriet Fiske 2005-2010 Secretary View profile

Directors and secretaries as filed at Companies House.

Do you help lead this organisation? Set up its network · How it works

About

Incorporated
23/05/2005
Also a registered charity
Rare Chromosome Disorder Support Group

Grants received

10 grants · £239,436 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £239,436 (10 grants)

Most recent

  • The National Lottery Community Fund £155,2742026-01-29
  • The National Lottery Community Fund £8,2002026-01-21
  • The National Lottery Community Fund £19,8812025-02-11
  • The National Lottery Community Fund £15,3002024-10-22
  • The National Lottery Community Fund £9,3802023-06-02
Board analysis

Board DNA

How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.

8 directors on the board

10.6y median 12y
average tenure
21.1y
longest tenure

Directors past 6 years

First-time vs portfolio directors

First-time (5)

Portfolio (3)

1
also govern a charity
0
left in the last 12 months

Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.

Education 1Retail and trade 1Tech and media 1

The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.

Gaps to watch

  • Several long-serving directors could step down together
  • No director brings board experience from anywhere else
  • Narrow spread of sectors across the board

Where to look Suggested search: succession planning for long-tenured seats; a director with board experience elsewhere.

Sources

Official record from Companies House. Governance Register calculates the connections.

Record details
Company number
05460413
Status
Active
Type
PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital)
Edition
Register edition compiled 27th September 2026
Labels
Official record from Companies House · Calculated derived by Governance Register.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data