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Registered charity · Great Dunmow

The Fragile X Society

The Fragile X Society is a registered charity (number 1127861) based in Great Dunmow, governed by 12 trustees and chaired by Steve Harris since 2020. Latest income £252k (2026). Source: Charity Commission register, updated 25th October 2026.

3.1 To advance the health and well being of individuals affected by the genetic condition known as the Fragile X Syndrome and associated conditions3.2 To advance public education about the syndrome in order to help improve the environment,...

  • 12 trustees
  • Income £252k (2026)
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Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password

Network

The large node is The Fragile X Society. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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People on this board also govern

Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
Education/training, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.fragilex.org.uk (opens in a new tab)
Linked company
The Fragile X Society
Registered
2009

Income and spending

  • YearIncomeSpending
  • 2026£252k£176k
  • 2025£145k£168k
  • 2024£134k£147k
Earlier years
  • 2023£138k£163k
  • 2022£206k£128k

Income trend, 2022 to 2026.

Charitable objects

3.1 To advance the health and well being of individuals affected by the genetic condition known as the Fragile X Syndrome and associated conditions3.2 To advance public education about the syndrome in order to help improve the environment, conditions and services offered to people with Fragile X and associated conditions, and their families.

Grants received

7 grants · £66,682 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

  • SHAREGIFT £5,0002024-09-22
  • The National Lottery Community Fund £9,9002023-02-10
  • The National Lottery Community Fund £9,0342021-01-29
  • Department for Digital, Culture, Media & Sport £9,6042020-08-07
  • The National Lottery Community Fund £9,6612017-01-25
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

11 trustees on the board

2.8y median 2y
average tenure
6y
longest tenure

Trustees past 6 years

7.6y
average years in governance

First-time vs portfolio trustees

First-time (9)

Portfolio (3)

7
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 11Education/training 11Religious Activities 1The Advancement Of Health Or Saving Of Lives 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 7Business services 3Property 2

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£145k latest income · spending exceeded income in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1127861
Status
Registered
Governing document
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15 OCTOBER 2008 as amended on 22 Sep 2020 as amended on 07 Nov 2020
Companies House
Company number 06724061 · Active
Contact on the register
01371875100 · info@fragilex.org.uk
Edition
Register edition compiled 25th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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