The Governance RegisterEdition 2026 · Compiled 30th August 2026

The Fragile X Society

Registered charity 1127861 Registered since 2009

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

11 trustees on the board

2.8y median 2y
average tenure
6y
longest tenure
2
trustees past 6 years
7.4y
average years in governance

First-time vs portfolio trustees

First-time (9)

Portfolio (3)

7
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 11Education/training 11Religious Activities 1The Advancement Of Health Or Saving Of Lives 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 7Business services 3Property 2

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

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Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£145k latest income · spending exceeded income in 2024 and 2025

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.fragilex.org.uk
Emailinfo@fragilex.org.uk
Phone01371875100
AddressSuite 5, The Chestnuts, 4 Stortford Road, Great Dunmow, Great Du

Finances

£144,935 latest income

YearIncomeSpending
2021£148,121£120,841
2022£205,521£127,654
2023£137,695£162,967
2024£133,582£147,224
2025£144,935£168,346

What it does

What

Education/trainingDisability

Who

People With Disabilities

How

Provides Advocacy/advice/information

Charitable objects

3.1 To advance the health and well being of individuals affected by the genetic condition known as the Fragile X Syndrome and associated conditions3.2 To advance public education about the syndrome in order to help improve the environment, conditions and services offered to people with Fragile X and associated conditions, and their families.

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15 OCTOBER 2008 as amended on 22 Sep 2020 as amended on 07 Nov 2020

Trustees (12)

12trustees
64median age
1aged 70+

Linked company (Companies House)

The Fragile X Society · 06724061 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 15/10/2008

6 governing document(s) held from Companies House.

Connected charities (4)

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