The Fragile X Society
Registered charity 1127861 Registered since 2009
Operates: Throughout England And Wales, Scotland, Northern Ireland
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Related organisations
- The Parochial Church Council of the Ecclesiastical Parish of ST Nicholas, Dereham 1 shared trustee
- Winchester Youth Counselling 1 shared trustee
- Church Estate and Headborough Charity 1 shared trustee
- MID-Norfolk Singers 1 shared trustee
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.fragilex.org.uk |
| info@fragilex.org.uk | |
| Phone | 01371875100 |
| Address | Suite 5, The Chestnuts, 4 Stortford Road, Great Dunmow, Great Du |
Finances
£144,935 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £148,121 | £120,841 |
| 2022 | £205,521 | £127,654 |
| 2023 | £137,695 | £162,967 |
| 2024 | £133,582 | £147,224 |
| 2025 | £144,935 | £168,346 |
What it does
What
Education/trainingDisabilityWho
People With DisabilitiesHow
Provides Advocacy/advice/informationCharitable objects
3.1 To advance the health and well being of individuals affected by the genetic condition known as the Fragile X Syndrome and associated conditions3.2 To advance public education about the syndrome in order to help improve the environment, conditions and services offered to people with Fragile X and associated conditions, and their families.
Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15 OCTOBER 2008 as amended on 22 Sep 2020 as amended on 07 Nov 2020
Trustees (12)
- Steve Harris Chair since 2020
- Andrew Jaquesage 60 since 2021
- Andy Clarkeage 34 since 2022
- Anne Eccleshallage 67 since 2021
- Erin Williams since 2026
- Jonny Cobboldage 38 since 2024
- Lily Pattison since 2026
- Michelle Flynn since 2025
- Molly Jaques since 2026
- Patricia Eleanor Grace Pattisonage 56 since 2024
- Tim Eccleshallage 67 since 2020
- Tim Eccleshallage 67 since 2023
Linked company (Companies House)
The Fragile X Society · 06724061 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 15/10/2008
6 governing document(s) held from Companies House.
Connected charities (4)
- The Parochial Church Council of the Ecclesiastical Parish of ST Nicholas, Dereham 1 shared trustee
- Church Estate and Headborough Charity 1 shared trustee
- MID-Norfolk Singers 1 shared trustee
- Winchester Youth Counselling 1 shared trustee
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