Registered charity · Southampton
Association for Glycogen Storage Disease (UK) Limited
Association for Glycogen Storage Disease (UK) Limited is a registered charity (number 1132271) based in Southampton, governed by 7 trustees and chaired by Dr Florence Osbourne since 2021. Latest income £174k (2025). Source: Charity Commission register, updated 25th October 2026.
Also known as Agsd (UK), Pompe UK (Charity Commission)
- 7 trustees
- Income £174k (2025)
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Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password
Network
The large node is Association for Glycogen Storage Disease (UK) Limited. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.agsd.org.uk (opens in a new tab)
- Linked company
- Association for Glycogen Storage Disease (UK) Limited
- Registered
- 2009
Income and spending
- YearIncomeSpending
- 2025£174k£212k
- 2024£242k£198k
- 2023£144k£157k
Earlier years
- 2022£132k£145k
- 2021£123k£142k
Income trend, 2021 to 2025.
Charitable objects
THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGENSTORAGE DISEASE
Grants received
4 grants · £54,100 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £54,100 (4 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Dr Florence Osbourne Chair since 2021
- Ailsa Arthur since 2017
- Dr Charlotte Dawson since 2023
- Dr Karolina Stepien since 2026
- Kempton Rees since 2023
- Rachel Thomas since 2020
- Sarah Chikhani since 2020
Trustees past 6 years
- Ailsa Arthur since 2017
- Rachel Thomas since 2020
- Sarah Chikhani since 2020
First-time vs portfolio trustees
First-time (7)
- Dr Florence Osbourne Chair since 2021
- Ailsa Arthur since 2017
- Dr Charlotte Dawson since 2023
- Dr Karolina Stepien since 2026
- Kempton Rees since 2023
- Rachel Thomas since 2020
- Sarah Chikhani since 2020
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1132271
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 5 AUGUST 2009
- Companies House
- Company number 06981121 · Active
- Contact on the register
- 0300 123 2790 · info@agsd.org.uk
- Edition
- Register edition compiled 25th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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