Association for Glycogen Storage Disease (UK) Limited

Registered charity 1132271 Registered since 2009

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

4.6y median 5y

average tenure

longest tenure

trustees past 6 years

7.5y

average years in governance

7 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 7Education/training 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience

Health and social care 7Agriculture 1Arts and leisure 1

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Breaking Barriers NW Similar size; both Disability
Kingscare League of Friends Similar size; both Disability
Building Circles Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.agsd.org.uk
Email	info@agsd.org.uk
Phone	0300 123 2790
Address	A G S D UK, PO Box 699, SOUTHAMPTON, SO50 0QT

Finances

£173,952 latest income

Year	Income	Spending
2021	£122,881	£141,668
2022	£131,749	£144,848
2023	£143,716	£156,761
2024	£242,277	£197,548
2025	£173,952	£212,211

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesOther Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGENSTORAGE DISEASE

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 5 AUGUST 2009

Trustees (7)

7trustees

57median age

0aged 70+

Dr Florence Osbourne Chair since 2021
Ailsa Arthurage 69 since 2017
Dr Charlotte Dawsonage 56 since 2023
Dr Karolina Stepienage 49 since 2026
Kempton Reesage 58 since 2023
Rachel Thomasage 58 since 2020
Sarah Chikhaniage 42 since 2020

Linked company (Companies House)

Association for Glycogen Storage Disease (UK) Limited · 06981121 · Active

PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 05/08/2009

2 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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