Company · Oldbury
Association for Glycogen Storage Disease (UK) Limited
Other human health activities
Official record Companies House · updated 27th September 2026 · Sources
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Who leads it
Previous officers 17
- Robert Seaborne 2018-2021 View profile
- Heneage Legge-Bourke 2017-2019 View profile
- Jane Mary Guy 2017-2020 View profile
- Phillip Prosser 2017-2018 View profile
- Nicholas Stephen Jones 2017-2026 View profile
- Shaun Phillip Griffin 2014-2017 View profile
- Stuart William Alderson 2014-2020 View profile
- Wendy Bascal 2014-2015 View profile
- Michael Hugh Porter 2012-2019 View profile
- Mary Agnes Middleton 2012-2013 View profile
- Jayesh Pindolia 2011-2022 View profile
- Andrew Widgery Wakelin 2010-2014 View profile
- Patrick Martin Phillips 2010-2015 View profile
- Susan Del Mar 2009-2013 View profile
- Allan David John Muir 2009-2010 View profile
- Neil John Bradbury 2019-2020 View profile
- Ann Phillips 2009-2014 View profile
Directors and secretaries as filed at Companies House.
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About
- What it does
- Other human health activities
- Incorporated
- 05/08/2009
- Registered office
- Oldbury
- Also a registered charity
- Association for Glycogen Storage Disease (UK) Limited
Grants received
4 grants · £54,100 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £54,100 (4 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.
7 directors on the board
- Dr Karolina Maria Stepien Director · appointed 2026
- Ailsa Arthur Director · appointed 2017
- Sarah Chikhani Director · appointed 2020
- Rachel Sylvia Ann Thomas Director · appointed 2020
- Kempton Metcalfe Rees Director · appointed 2023
- Dr Florence Emilie Osborne Director · appointed 2021
- Dr Charlotte Dawson Director · appointed 2023
Directors past 6 years
- Ailsa Arthur Director · appointed 2017
- Sarah Chikhani Director · appointed 2020
- Rachel Sylvia Ann Thomas Director · appointed 2020
First-time vs portfolio directors
First-time (5)
- Dr Karolina Maria Stepien Director · appointed 2026
- Ailsa Arthur Director · appointed 2017
- Rachel Sylvia Ann Thomas Director · appointed 2020
- Dr Florence Emilie Osborne Director · appointed 2021
- Dr Charlotte Dawson Director · appointed 2023
Portfolio (2)
- Sarah Chikhani Director · appointed 2020
- Kempton Metcalfe Rees Director · appointed 2023
Also govern a charity
Left in the last 12 months
- Nicholas Stephen Jones Director · appointed 2017 · resigned 2026
Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.
The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.
Sources
Official record from Companies House. Governance Register calculates the connections.
Record details
- Company number
- 06981121
- Status
- Active
- Type
- PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital)
- Accounts next due
- 31/12/2026
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from Companies House · Calculated derived by Governance Register.
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