Registered charity · Sunderland
International Niemann-Pick Disease Alliance
- 4 trustees
- Income £187k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Argentina, Australia, Brazil and more
- Website
- www.inpda.org (opens in a new tab)
- Linked company
- International Niemann-Pick Disease Alliance
- Registered
- 2012
Income and spending
- YearIncomeSpending
- 2025£187k£184k
- 2024£215k£90k
- 2023£72k£58k
Earlier years
- 2022£20k£10k
- 2021£42k£8k
Income trend, 2021 to 2025.
Charitable objects
TO RELIEVE SICKNESS AMONGST FAMILIES AFFECTED BY NIEMANN-PICK DISEASES,ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES,INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING SUCH DISEASES AS THE GOVERNING COUNCIL MAY IN ITS DISCRETION DETERMINE("THE OBJECTS")
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Sandra Cowie Chair since 2015
- JIM Green since 2012
- Sarah Janetta since 2023
- Toni Angela Mathieson since 2012
Trustees past 6 years
- Sandra Cowie Chair since 2015
- JIM Green since 2012
- Toni Angela Mathieson since 2012
First-time vs portfolio trustees
First-time (3)
- Sandra Cowie Chair since 2015
- Sarah Janetta since 2023
- Toni Angela Mathieson since 2012
Portfolio (1)
- JIM Green since 2012
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1150256
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 09 NOV 2012
- Companies House
- Company number 08287609 · Active
- Contact on the register
- 01914150693 · info@inpda.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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