International Niemann-Pick Disease Alliance
Registered charity 1150256 Registered since 2012
Operates: Throughout England And Wales, Argentina, Australia, Brazil, Canada, China, France, Germany, Italy, Netherlands, Norway, Spain
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Boards that share trustees
- International Niemann-Pick Disease Registry 1 shared trustee
Related organisations
- International Niemann-Pick Disease Registry 1 shared trustee
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.inpda.org |
| info@inpda.org | |
| Phone | 01914150693 |
| Address | Suite 2E, NORTH SANDS BUSINESS CENTRE, Liberty Way, Roker, SUNDERLAND, SR6 0QA |
Finances
£186,520 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £41,586 | £8,052 |
| 2022 | £20,112 | £10,393 |
| 2023 | £72,315 | £57,616 |
| 2024 | £214,845 | £89,725 |
| 2025 | £186,520 | £184,220 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesWho
Other Defined GroupsThe General Public/mankindHow
Provides Advocacy/advice/informationActs As An Umbrella Or Resource BodyCharitable objects
TO RELIEVE SICKNESS AMONGST FAMILIES AFFECTED BY NIEMANN-PICK DISEASES,ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES,INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING SUCH DISEASES AS THE GOVERNING COUNCIL MAY IN ITS DISCRETION DETERMINE("THE OBJECTS")
Governing document: MEMORANDUM AND ARTICLES INCORPORATED 09 NOV 2012
Trustees (4)
- Sandra Cowieage 60 Chair since 2015
- JIM Greenage 77 since 2012
- Sarah Janetta since 2023
- Toni Angela Mathiesonage 57 since 2012
Linked company (Companies House)
International Niemann-Pick Disease Alliance · 08287609 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 09/11/2012
1 governing document(s) held from Companies House.
Connected charities (1)
- International Niemann-Pick Disease Registry 1 shared trustee
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